esa help please

[cuchiandme]

ty estellyn

 

sounds awful re; not following tribunal... is there anyone safe in these dreadful times.

[cuchiandme]

i think my main point is why are dwp asking for more info. when they already told me it was going to tribunal? they do confuse me so much

[estellyn]

i think my main point is why are dwp asking for more info. when they already told me it was going to tribunal? they do confuse me so much

 

Sometimes, during the appeals process, a senior decision maker will go through a load of cases waiting for Tribunal to see if the decision can be changed - they're under pressure to reduce the number of Tribunal cases. Sounds like yours is a contender - which is a good thing.

[MrSooty]

We've not long held our son's funeral - he had 2 Care Coordinators in the past 12 months and neither of them did ANYTHING that we could honestly agree helped him in ANY way!!

 

He endured Mental Health issues for several years and was NEVER offered a treatment/therapy that HE wanted or that was shown to be EFFECTIVE!

 

Lots of chat about 'support' (the invisible kind that does nothing for your situation) and lots of Acts being quoted in long letters pretending to be 'polite', but sadly nothing that actually helps your loved one get better!

 

If I can presume to offer anyone ANY advice on the subject, it would be this - Whatever you do, make sure you express your concerns/worries/doubts/needs IN WRITING as often as you feel the need and then if you do NOT get any sense out of them (and it is doubtful you will), then escalate the matter through their complaints procedures and keep at them!

 

They will ALL have a legal team behind them, so you may need to enlist specialist help and advice, but do NOT give up!

 

If you are the person in need, GET HELP and if you are the friend/carer/family of the person in need - GET HELP - we have found out too late that being nice, or reasonable or patient DOES NOT WORK - be a pain, be as awkward as you know how, be persistent and be committed to getting the best care you can!

 

Good luck

[Consumer dude]

I agree, and if u believe u might snap it might be an idea to present to the A&E. I've done that one myself..

[Consumer dude]

can anyone please explain to me what is in the "remit" of a care coordinator"?

i tried to get intouch with mine today... as i felt very depressed and got drunk.... for the first time in months... due to this pressure of waiting on a tribunal...

are they there to care at all?

i have had no word from her and wont have now its nearly evening

 

Paper work and ticking boxes..

[MrSooty]

The comment 'Ticking Boxes' hits a very raw nerve.....

 

I have never known a job title that was so inappropriate to the duties that were actually performed by those involved!

 

I had long ago renamed her the "lack of care uncoordinator' - with good reason!

[MrSooty]

If you want a good cry (it's way too serious to be laughing about), try looking through a document named "refocussing the Care Programme Approach 2008".....

 

My only caution would be, that's the THEORY, it doesn't work like that in reality - maybe they haven't been required to read it and still work the 'old way'????

[Consumer dude]

Got the t shirt pal..

[Consumer dude]

Care in the community went out of the window years ago..

[Kitten1]

I'm a care coordinator for the elderly mental health team. I can assure you my job involves an awful lot more than ticking boxes.

 

If anyone has an issue with their CCO then they need to discuss it with the team leader or their consultant psychiatrist.

[MrSooty]

If only life was so simple....

 

It was the Team Manager that was the problem and the manager above wasn't any better - the whole system doesn't work, or at least, that's our experience of it and we had plenty of other professionals who agreed with us!

 

The reputation of the CMHT in our area is very poor indeed, as is the whole Trust - appearing regularly in the lower quartile of all performance metrics tables - if you didn't have it before, you'd probably be suffering from depression after dealing with them!

 

No personal offence intended here, perhaps the individuals are all wonderfully loyal and committed folks, but how can they stick it day in day when they clearly are achieving so little????

 

Perhaps Kitten1 can attest that her JD matches up with the reality of her working day and she is able to deliver visible and measurable results to her 'service users' ?

 

Interested to know how many she has at any one time - 30 or more????

[reallymadwoman]

If only life was so simple....

 

Interested to know how many she has at any one time - 30 or more????

 

This is of course the root of the problem - too many clients, not enough staff or money. I have no doubt that the vast majority of people working in the mental health sector are there because they want to do the best they can for their clients. Unfortunately their best is often restricted by their total inability to make more hours in the day or more days in the week - many with whom I have come into contact would love to be able to drop everything and spend as much time with each client as they need. Regrettably they very rarely can, if ever.

[MrSooty]

Thank you for your honesty, it is appreciated...

 

However, this then means (ipso facto) that it is the 'service user' - or, as we used to know them, the HUMAN BEINGS, who suffer here the most.

 

The very people the system and staff who populate it, intended to provide help and support for and yet, for the very reasons you state, it isn't happening and YES, we ALL know about cuts and resources, BUT there are ARMIES of highly paid MANAGERS (another misused word) in this system that haven't got a clue and rather than make a business case for change (more staff/better working practices) they simply take the money and keep their mouths shut!

 

The regulatory system is also virtually useless, how many people really believe that Police investigating Police is ever a good idea and it's the SAME in the NHS - if you have any doubts, read all about the CQC - the ones who certified Bristol for operating on babies and thought Staffordshire was just wonderful, until a tidal wave of public opinion and outcry revealed the rotten, disgusting mess that had festered for too long......it's a national disgrace and our Mental Health Services are in the vanguard of this crime!

 

Tell me about the shining examples of good practice and humanity winning against the odds, but please don't lets pretend these routine failures are only the rare exceptions - they aren't and if we had genuine 'transparency' into the workings of what over a MILLION employees of the NHS are doing every day, we would all be rioting......

[mr_mastiff]

This is my local care centre. Do you wonder why people do not go!

 

http://www.bbc.co.uk/news/uk-england-leicestershire-23895883

[Kitten1]

Ok, lets look at it from another angle. In an ideal world, what would you get from a care coordinator? Try & temper it with realism. We are humans. We care or we wouldn't be doing the job. While I'm at work, supervising and coordinating multiple people's care, I am also supervising students - both nurses & junior doctors - so there is somebody to take over when we retire. I'm dealing with ridiculous bureaucracy within social services & I don't even work for them.

 

I'm attending urgent cases to try & avoid admissions. I'm trying desperately to get somebody who is really ill to even engage with services in the first place. So forgive me if we have to prioritise our caseload.

 

I love my job. I love my colleagues & I have a wonderful team leader who has just been offered redundancy. So who gets the pleasure of leading the team? Somebody on less pay with potentially less experience & knowledge.

 

Oh and by the way, I can get more money in the private sector.

[abc123def]

(((Kitten)))

 

I have had good care and support from my CMHT and my care co-ordinator is excellent. I am on a recovery road and wouldn't be without it.

[mr_mastiff]

Ok, lets look at it from another angle. In an ideal world, what would you get from a care coordinator? Try & temper it with realism. We are humans. We care or we wouldn't be doing the job. While I'm at work, supervising and coordinating multiple people's care, I am also supervising students - both nurses & junior doctors - so there is somebody to take over when we retire. I'm dealing with ridiculous bureaucracy within social services & I don't even work for them.

 

I'm attending urgent cases to try & avoid admissions. I'm trying desperately to get somebody who is really ill to even engage with services in the first place. So forgive me if we have to prioritise our caseload.

 

I love my job. I love my colleagues & I have a wonderful team leader who has just been offered redundancy. So who gets the pleasure of leading the team? Somebody on less pay with potentially less experience & knowledge

 

Oh and by the way, I can get more money in the private sector.

 

Kitten1, I am not having a go at the individuals within the system, there are many excellent ones. It is the failings of the government and their constant misleading of the general public about the resources available which makes me so mad.

[cuchiandme]

just wanted to say...that i won my appeal today.. what happens next? no one told me what group i will be in..

[dpick]

With last appeal I attended the person involved was told the result then got a confirmation letter later.

 

dpick

[antone]

You should receive written notification from the Tribunal which might specify which group you are to be placed in. If not, the DWP will make the decision.

[cuchiandme]

ty both... if they put me in wrag can i protest that?

[Nystagmite]

Only if you meet the criteria for the support group.

[cuchiandme]

whats is the criteria?

[mr_mastiff]

whats is the criteria?

 

Read the following near the bottom it gives you details.

 

http://www.disabilityrightsuk.org/employment-and-support-allowance-overview