Will I cease to claim DLA getting nervous bbc1 puts the wind up me.

[Watchingmyback]

I have been awarded a dla claim high rate care low rate mob. I have diabetes and rheumatism and no warning when I have hypos.

 

I had to sit on a board with 3 members interviewing me they asked my about my work which is a social care assistant and I work 22 hrs per week.

 

But I just feel nervous that I will b told I shouldn't claim this. Since I got the award in 2006. My condition has now complications. I have high blood pressure and suffer severe anxiety and depression for which I get treatment.

 

 

I read a thread on here which indicated to me that high rate care and working would contradict each other. Could someone please give me some advice for or against continuing with this claim. Iv read through my form and feel happy with the answers I gave in 2006 that I need constant supervision even tho I don't have this I do need it. As I am at risk of having a hypo attack. When I go to work I make sure my blood sugars are significantly elevated to prevent this but this is at the cost to my long term health but is necessary for my job otherwise I would actually need someone with me at all times to keep an eye on me. This has happened, Iv went low whilst at work but i do no longer than 3 hrs at a time and then I'm back home were I have got supervision. I do a 6 hr shift in my house and my wife is there the whole time to keep an eye on me.

 

 

Advise or guidance would be great as I'm very anxious. This has made me consider what my wife and I have to do in order to exist. I could give numerous examples which are lengthy and time and cause financial strain to me whole family.

[Nystagmite]

The help you needs has to be reasonable. Do any of your needs contradict what you wrote on your form?

[Watchingmyback]

The help you needs has to be reasonable. Do any of your needs contradict what you wrote on your form?

 

The help I need would actually be to have constant supervision as I say my hypos do happen all the time with no warning the only why I can prevent this is to have high blood sugars. Which causes long term

Nerve damage but I do this so I can go to work for a maximum of 3 hrs and then I can go home and eat something and then I can maybe do another 2 hrs and go straight back home and rest.

 

I have wrote I need constant supervision during the day. But it also says on the form if u need this help but don't get it then u can still put down that I would need this despite it not being available. My wife constantly worries while am at work in case I go low. She also rings and texts asking me what my blood sugar readings r.

[Nystagmite]

 

I have wrote I need constant supervision during the day. But it also says on the form if u need this help but don't get it then u can still put down that I would need this despite it not being available.

 

This is correct. In order to get DLA, the need for help must be reasonable - you don't need to be getting the help qualify.

[Watchingmyback]

Thanks very much for ur help.

 

I just read my form there and my gp states that I have hypos with no warning despite monitoring and strict diet and therefore require constant supervision. He states that Iv been diagnosed with rheumatism by a consultant which effects my arms elbows fingers hips and knees. And my condition has not got any better but worse with nore complications like high blood pressure and I have 5 more medications which I now take some up to 5 or 6 times a day. And they were aware that I worked when I claimed in 2006. When I was awarded in indefinite period. But I'm

Still concerned that I read that high rate care and working would contradict each other.

[Watchingmyback]

Bump

[Watchingmyback]

Just to update anyone Got it sorted rang the advice line bretter to just get it from the horses mouth. It's the dwp advise line they said not to wry that my husbands job would not contradict the high rate care. Happy days .

[zippygbr]

high rate care and having a job don't contradict - Prof Hawkin anyone ? or anyone else who has a job and requires a full time carer/PA

[johnvernon74]

I also watched the BBC programs and Im not concerned. Im on High rate mobility and medium care. I work full time although 2 days from home and have reasonable adjustments. My illness is life-long and private, however I have bad days and good days. At times I feel better than others but need help during day and night with medication which I must take for prolonged life.

[scottsharon]

Although I cant work at present due to a physical condition (which Im finally getting a scan for) I have in the past worked very long hours when my mental health has allowed. I have what is termed a severe mental disorder, but have held positions of responsibility working with vulnerable adults and the elderly, I was supported to study and achieve nvq level3 in health and social care all while receiving dla and while also receiving support from my mental health team as required, I made a point of always telling my employers the truth about my condition and have only once come across someone with a bit of a neanderthal point of view. Where at other times I have been totally unable to function and normally spend 3 - 6 months in hospital not knowing what planet Im on. Dla is to support those with serious and long term health issues to deal with life in a way that is best for them and hopefully remove a few obstacles at the same time. If you cannot work due to the challenges you face - then that is fair enough, but nobody (including the dwp) will penalise you for working paid or voluntarily if your conditions allow. With the amount of fraud and fake claims going on then its no wonder these programmes are springing up, but if you are genuine you have nothing to worry about - except the limitations you are placing upon yourself to fit sociey's view of you. Try not to worry and if you are doing something with good intentions and a clear conscience and its beneficial to you and your family - dont let anyone stop you. Regards Scott

[Nystagmite]

high rate care and having a job don't contradict - Prof Hawkin anyone ? or anyone else who has a job and requires a full time carer/PA

 

Yeah, It's more to do with someone claiming they can't do something without help and in their job, they do that thing with no problem.

[queensclose]

the rules are simple... if anything changes for better or worse you need to inform DWP

[delilahsahb]

Hi all, i hate to worry everybody but i have a 14 year old son who is Insulin Dependent Diabetic since the age of 3. He was on DLA at middle care rate and lower mobility. He is on 5-6 injection a day, he doesnt recognise hypos and he has a phobia of needles so i have to inject him, he also has poor control. I got reply last Friday for his renewal and his benefit has been stopped completely. His Gp and Consultant have said there is no change to his condition and his nurse said they are stopping everybodies DLA hoping that no-one appeals. I appealled immediately but it can take up to 14 weeks i have been told. Its a massive blow to our income and i cant work because i am on standby constantly for my son.Diabetes Mellitus is a potentially life threatening illness yet the DLA has decided my son should be able to manage his illness without help i.e. do his own injections, calculate how much carbs are in each drop of food he is about to eat, monitor his blood glucose levels and recognise his hypos and to take responsibility of his own illness at the age of 14. Great!! its the same government that says he isnt responsible at that age to buy aspirin but he is ok to deal with an illness that could kill him. It beggars belief but i know he is not the only one losing his benefits so i would be prepared if your DLA is to come up for renewal :-(:mad2:

Delilah

Edited January 24, 2012 by delilahsahb
adding

[scottsharon]

Hi Delilah - sorry to hear you are having problems... If your son cannot attend school due to this as you say you cant work as you are on constant standby for him, or if he is provided with constant support at school then to me that would suggest a case for higher rate care. you should also if this is the case be eligable for carers allowance (which you probably already know). If this 'needle-phobia' is something that has been discussed and recognised by the clinic/gp/consultant they should include this information in whatever supporting material they provide. The CAB might be worth a try if you are banging your head against a brick wall.

Good - luck Scott

[Nystagmite]

Hi Delilah - sorry to hear you are having problems... If your son cannot attend school due to this as you say you cant work as you are on constant standby for him, or if he is provided with constant support at school then to me that would suggest a case for higher rate care. you should also if this is the case be eligable for carers allowance (which you probably already know). If this 'needle-phobia' is something that has been discussed and recognised by the clinic/gp/consultant they should include this information in whatever supporting material they provide. The CAB might be worth a try if you are banging your head against a brick wall.

Good - luck Scott

 

The need for help at school would only imply mid rate care...

[scottsharon]

Thanks Nystagmite..

[delilahsahb]

Hi, thank you for your support. He has injections 5-6 times a day, 8am, 11am, 1pm two injections at 6pm one at 10.30 and sometimes 1 through the night about 3am when we check his blood glucose levels. His injections at school are administered by me, i have to drive 3 miles every week day to inject him. We have managed to work a routine whereby i give him his 11am injection then by the time i go round the local shops or to the bank its time to go back and give him his lunchtime injection. Its a rural area we live in and the shopping areas such as asda or tesco are closeby to the school so it works out okm just now but he is also at risk 24/7 of hypos which can be life threatening and would require me to go back up to the school. Losing that money is drastic, i doubt i will be able to make ends meet so i may have to sell the car and home school my son. I have just been diagonosed with severe osteo arthritis today myself so the hits just keep on coming.

Delilah x

[Watchingmyback]

Although I cant work at present due to a physical condition (which Im finally getting a scan for) I have in the past worked very long hours when my mental health has allowed. I have what is termed a severe mental disorder, but have held positions of responsibility working with vulnerable adults and the elderly, I was supported to study and achieve nvq level3 in health and social care all while receiving dla and while also receiving support from my mental health team as required, I made a point of always telling my employers the truth about my condition and have only once come across someone with a bit of a neanderthal point of view. Where at other times I have been totally unable to function and normally spend 3 - 6 months in hospital not knowing what planet Im on. Dla is to support those with serious and long term health issues to deal with life in a way that is best for them and hopefully remove a few obstacles at the same time. If you cannot work due to the challenges you face - then that is fair enough, but nobody (including the dwp) will penalise you for working paid or voluntarily if your conditions allow. With the amount of fraud and fake claims going on then its no wonder these programmes are springing up, but if you are genuine you have nothing to worry about - except the limitations you are placing upon yourself to fit sociey's view of you. Try not to worry and if you are doing something with good intentions and a clear conscience and its beneficial to you and your family - dont let anyone stop you. Regards Scott

 

Scott thank u very much for ur insight and help in my struggle with claiming this for a genuine reason. I'm a type 1 diabetic with depression anxiety(check out this post example) and arthritis. I have little control of Hypnos and my mental health is good at the moment last year I struggled to wash shave etc.

[Watchingmyback]

Hi, thank you for your support. He has injections 5-6 times a day, 8am, 11am, 1pm two injections at 6pm one at 10.30 and sometimes 1 through the night about 3am when we check his blood glucose levels. His injections at school are administered by me, i have to drive 3 miles every week day to inject him. We have managed to work a routine whereby i give him his 11am injection then by the time i go round the local shops or to the bank its time to go back and give him his lunchtime injection. Its a rural area we live in and the shopping areas such as asda or tesco are closeby to the school so it works out okm just now but he is also at risk 24/7 of hypos which can be life threatening and would require me to go back up to the school. Losing that money is drastic, i doubt i will be able to make ends meet so i may have to sell the car and home school my son. I have just been diagonosed with severe osteo arthritis today myself so the hits just keep on coming.

Delilah x

 

 

Oh my goodness that seems like there just putting u off. I found the sight on here with the sticky a2z of health problems on it then u go to the condition and it gives what u would need to struggle with or need help with to qualify for low med or high rate care and mobility.

 

I also signed up to the work and benefits website they give u advise for free or charge a fee for more info. I'm only on the free bit at the moment. But it may be worth while signing up and getting some of the info. They send me the daily tips in relation to dla they have so far been very helpful.

 

 

Don't loss hope keep in there and re apply and use as much research into the condition and use this for ur case to back up a being awarded it keep us updated too. All the best. But were all in this together and were all going to face the dreaded assessments and who knows what will happen.