disability living allowance turned down for 5 year old son

[mich7k]

Just had a reply back saying that they recieved my communication asking to look at the claim again. They said they will look at the claim again and it may take up to 11 weeks for a decision so i just have to wait.

[mich7k]

oh my godness i guess theyare gonna stretch it out then? although the letter did say 11weeks then i have togothrough an appeal then atribuneral pls excuse my typ9ing i have an issue with my space bar since my son dropped it during an episode

[mich7k]

well got a reply back this week telling my that although they considered the points raised in my letter they arent changing there decision and that he isnt entitled to any dla! so on to the tribunral again i rang up to find out why apparently they are relying on the fact the school said hes fine during the day and that he can dress himself after p.e. and that the incontinence aids he uses at night should be suffiecient to keep him dry! so therefore he sleeps through the night pfft! im so upset that we have to go through this again its like they didnt even read my letter they have discarded all of the problems that he has as the care that is given to him especially at night, i go to get him from school today and he is in the line crying his eyes out the teacher tells me he knocked someones bag over by accident so he said sorry but in his eyes they were all laughing at him and blaming him:( the teachers apologising to me saying he was fine so she cant understand why he is crying i say to her for you this is a nothing but i will have to deal with this all weekend as he sees things differently to you and i. yet she quite happliy filled out the from telling the dla that hes fine and needs no extra help...... duh so i am trying to get my son to the car and i see my friend who has autistic twins (4)and they are kicking off she cant even get them to the car she asks me to hold one of them as she was late getting to school to pick up her eldest and as a result she had to change her route which for them is a big mistake so ive got 3 kids crying she starts crying as the school are giving her a hard time they wont keep them at lunchtime and she has to pick them up at 3.10pm before all the other kids its like we are been punished for having autistic children ...

[mich7k]

so true i finally got a letter on saturday for an appointment to take him to the childrens centre at the hospital so instead of seeing all different people for all of his problems hopefully i will be able to get treatment for him under one roof so to speak. i thought that not having a diagnosis shouldnt matter in getting dla maybe thats changing i cannot believe it to be honest that he was refused again after last time i wrote a letter and was completely honest about his care needs and they are saying his care needs are no more than a child his age????? the system they have for this is so unfair......... i have enough to deal with and i have to fight for him again it is actually making me ill ive had migraines and neck pain with all this i cant even get any sleep because my boy cant sleep so i have to stay up with him sorry for the rant im just tired:(

[mich7k]

thank u 4 ur help i saw the refrences on the previus submission last time but i didnt use them in my reconsideration letter as i wasnt sure i could use them, yes he has the same care needs as last time they havent changed and because he can dress himself at pe hes ok?? he cannot administer his creams for his skin condition or give himself his medication especiallt the melatonin neither can he bathe himself the list goes on i poured out my heart in that letter and they said they still havent changed their decison ???? madness

[mich7k]

hiya quick update, I rang them last week to find out when the tribunal will be as i have been wait for weeks the advisor said that they are waiting for a file and they will get a letter out to me. Well yesterday I got a letter addressed to my son (hes 7) saying that they have lost his file and can i fill out another claim pack enclosed! only they sent an adult one! so I called back and was told that they have lost his file and are still looking for it so she sent out another one this morning for a child its a "change" form split into 3 parts so i have to find help to fill it out again then she said it will be passed to a decision maker who will look at it again as a priority! so do i fill it in as an appeal?

[mich7k]

Hi Marie thanks for your reply when I went to the advice centre they copied the original claim form before we sent it off I have a copy of the reconsideration letter as well so I have to start all over again do i add details of the speech therapist he is due to see and the hospital doctor who he is currently been accessed by in the new form as they are treating this as an appeal.

 

Plus I'm upset for my son as last week he came home with wet trousers and underwear as he had wet himself and was sat in the class all afternoon with wet clothes and was too nervous and embarrassed to tell anyone this happened twice all i got was an apology i didn't need that i just wanted then to look after him. The T.a was at the door saying "we always tell them to go" screwing up her face as if to say tough! Its so upsetting as they have their favourites and they only look out for their friends kids...

 

Anyway here we go again fighting for my boy.

[mich7k]

well i thought id give you a quick update as you really could not make this up! the dla rang me today to ask me if i had a copy of the school report and if so could i please fax it over. they apologised again for losing the file but said they would look at the claim again and send for a doctors report. she said she could not understand why it was refused as he has high care needs. it could take another 2-3 weeks oh well just add it on to the 7months we have being waiting ............

[mich7k]

im not sure i think so cause its going to the disputes team

[mich7k]

update got a call today to tell me that they still cannot find his file but after receiving the doctors report she can see that he has high care needs. She said that she was re-instating the benefit and that she was going to award him high rate care and low rate mobility and it will be backdated and i should get a letter in the next week or so and she apologised again for the delay. She also said that she would be awarding it for a few years but she did not say how many. Im relieved its sorted for him but i cant quite believe it until i get the letter.

 

Just want to say thanks guys for all your support

[mich7k]

thanks guys i thought it might be about that too i let you know when i get the letter

[mich7k]

Hiya all thank you for your congrats messages. I called them today as i havent had the letter yet they told me that he has been awarded high rate care and low rate mobility backdated from Jan and guess what it has been awarded until 2014!!!!! Thank u Jesus x I am so thankful for your support and help over the past 3 years at least I will have a break for a bit

[mich7k]

Hi everyone just to let you know i got the two letters today confirming it;defo hrc and lrm until 2014 and a payment would you believe all backdated:)