disability living allowance turned down for 5 year old son

[mich7k]

Hi gettingthrough thank you for your support and advice i tried to get help from the FF but they replied to me this week saying that my son is not severely disabled so i am not entitled to any help... My sons teacher is really nice anf friendly but she hasnt been able to support my claim for dla as he is a model child at school, i think they are trying to say that he just has challenging behaviour at home like im a rubbish parent???

[mich7k]

thank you Olive family for your support its in the hands of God now I wish i had claimed for it when he was younger i just got on with it. he almost lost two of his fingers as he used to scratch his fingers on the carpet when he was a baby and his elbows why do they make it so hard to get what they are entitled to? I am close to losing my home as i had to give up my job so im just waiting for a date for the tribunal.

[mich7k]

thanks Tiglet i hope it goes through ok:)

[mich7k]

Hi Guys and Gals just wanted to let give you a quick update i have been given a date for the tribunal 8/8/08 so pray for me and my boy, along with some tips! Thank you for your support

[mich7k]

Thanks getting through its the 6 weeks holidays and im exchasted! He's like a jumping bean from morning till night...........so i feel you

[mich7k]

lol! you guys have made me laugh i now know i at not alone! i didnt even finish putting up the wall paper in my son's room before i finished the wall he's already ripped it and drawn on it! So what's the point! Trying to explain it to a tribunal is going to be tricky im gonna do my best cause we really need it plus i have a hearing at court on the 14th to keep my home so i hope we are succesful as alot depends on it folks

[mich7k]

hi all just thought i'd give you a quick update, where do i start more stress?? Well anyway my case worker called me today to ask if i would mind having my appeal adjorned as my doctors had requested £50 payment to release my son's records. I said to her you are just chasing this up now???? when you requested the info from June??? i'm not happy as i feel that all of this should have been sorted so anyway she tells me its good to have medical evidence in the submission but if we could still win without it. i ask her what she thinks she tells me its ok and that we dont need it and keeps changing her opinion well anyway she calls the surgery and they say cant send it out till monday night bear in mind the tribunal is friday then she im so sorry maybe we should get it adjorned in the end i go to the surgery get the info myself and send it off to her recorded delivery........madness so now i even more nervous as to how its gonna go now?

[mich7k]

thank you for that i didnt even think! too many things going through my brain at the moment!

[mich7k]

thank you guys i will i have to write down everything too!

[mich7k]

Hi Guys!!! I know you have been waiting for the result well just to let you know that we didnt get any mobility but we got Middle rate care! It has being awarded for the next 2 years, Im happy cause ive been so ill all week this process is so stressful..

Thank you guys for your help and support over the past few months i appreciate it loads! I was shaking when i came out good job im not a criminal it was like being interogation (spelt wrong i know!)

[mich7k]

yes my case worker said i will get extra tax credits such a huge relief!

[mich7k]

Thanks Guys I Really Mean It Youre Support And Advice Has Been Such A Comfort Im Gonna Try And Get Some Sleep.........

[mich7k]

Hi guys i have revived this thread as i am in need of some advise, as you guys advised in September last year i applied to the family fund for a washing machine and a bed and bedding ect for my son anyway didnt here anything from them got a letter before christmas saying they need a copy of a report from my doctor/teacher/etc to proceed with my application well we are due to see the bed wetting specialist at the end of the month so i thought id get get to write something for me, well last week my washing machine well and truly packed up so i had to use all my son's DLA and my some of my tax credits and went of to currys to get a new one! i had to install it myself lol, anyway i just got a call from a lady who wants to come and see us next week any ideas what to expect will she be checking if we have too much or sruffy gits!!

[mich7k]

thanks gettingthrough i think im abit paranoid after all the fighting ive being doing the past year its feels strange now that someone wants to help me! i must be losing it. lol!

[mich7k]

HI the lady was lovely she stayed for a couple of hours said that she thinks that from what ive described my boy may have Aspergers and i tend to agree with her while she was her i started to cry! duh but i think it kind of got on top of me as i was abit nervous, she said we should here in about 6 weeks and she has applied for a holiday for me and the kids and some furniture for my sons bedroom as its wrecked!

[mich7k]

oh my gosh! you wont believe this i joined another forum thats supposed to support mums when i stumble across a forum saying dla for asthma? all of these so-called suportive mums saying its just a condition and not a disability and that people shouldnt get benefits for it when people have cancer, i was so upset that i signed off for awhile then i went back and wrote that you shouldnt judge as there are different levels of illness and some people suffer more than others.

I posted on there are the thread seemed to be so intimidating and i thought parents who are suffering and need help and adults too would be put off if they were reading that thread i know that everyone is allowaed there own views but they came across as gang up on people who cant breathe and have skin conditions

 

Thanks for reading my rant im going to close my account with them x:mad:

[mich7k]

hiya guys hopeeveryone is ok:) Im resurecting this tread again as im going through my sons renewal:( its such a horrible process; anyway ge was awarded until jan 2010 so they sent the renewal form in July i couldnt face doing the forms after all the stress of last time. This time i went to the advice centre and the lady helped me fill out the forms it took us two weeks mind! sent them off end of october got a letter today stating that they are going to get a report from school before they make a decision, i stated in the form that because of his behavourial problems he is ok at school because he likes order and structure. Although nothing has changed since the last time we applied and the teacher he had then wasnt very supportive so im thinking do you think they will turn him down just on her report? cause he still has the asthma ezecema and incontienance and insommnia and all he other issues which could be aspergers altough i cant get a diagnosis as he now has a fear of going to the doctors after he had a melt down in the surgery when he was supposed to have his swine/flu jabs but he now has a fear of needles, thats another story! which i feel the the welfare rights officer has put down on the form well as well as listing all his medications and all he time i spend with him, would they really be able to turn him down based on what the teacher says despite all the other evidence they have?

 

fretting in advance

 

Mich x

[mich7k]

thanks bookworm for your advice im trying keep calm and prepare myself for the fight so to speak! anyway i also think i should get high rate care as well cause its not just the aspergers its also the asthamas and excema as well as his incontience, plus he has to wear and alarm now duringtheday under his clothes to help him getto theloo myspacebaris shot as you can see. i read ur thread all the way well done im so happyfor you but why is it we have to fight so hard for this ure right i did just accept the middle rate care at the tribunel cause i think my fight has just had enough and i was sodepressedbythewhole processand trying tokeep it together for the kids thanks for yourongoing support ill keepyou informed Michx

[mich7k]

right help is needed just had the letter back just to add to the stress they have refused his dla altogether said hes entitled to nothing!

I went to the welfare rights to get help to fill out the form so i guess it dosent really matter who fills out the form so here we go another fight again not sure where to start will this mess up all my benefits now because i get carers allowance and extra tax credits? his current award runs out 14 january 2010 this was awarded at the tribunal will and he is due a payment on 5 january im fretting nowcause he still needs the extra stuff nappy pants sheets and pjs and extra bedding etc that i buy each month shall i ring them and check?

[mich7k]

Hi everyone im writing a letter for reconsideration for my sons dla ive being read the submision from the tribuneral from last time and it has references in such as R(A)2/80 states .. can i put them in or just write the reasons? any help much apprecaited ta

[mich7k]

any one there????????

[mich7k]

Im about to post off this letter for reconsideration of my sons dla award could you please advise if its sounds ok? Thank u

 

 

　

　

 

07/01/2010

Dear Sir/Madam

I’m writing to you in regards to the letter received dated 17 December 2009 regarding the renewal of xxxx disability living allowance.

I would like to ask for a reconsideration of the decision that said that he is no longer entitled to the benefit. I disagree with this as the decision was based on the information provided by the class teacher. Which covers around the 5 hours per day he is at school. As stated on the application form the structure that the school day provides is good for Rashaun. I have however described in detail on the application form the lack of my son’s concentration and impulsive behaviour outside of the school environment.

However I do not believe that his other care needs have not been taken into consideration by the decision maker.

　

xxxx requires he inhalers regularly during the day these are administered by myself to control his breathing. When he is running around the house due to his hyperactivity he becomes breathless and has to take his medication to breathe again I provide this care around 3 times per day.

When xxxx becomes engrossed in the television or game he wets himself and does not make it to the toilet in time. xxxx has been potty trained but does not understand that it can be left and go to the toilet. As a result xxxx will soil himself at least 4 times during the day which means I have to clean the carpets and his clothes. He often hides his soiled clothes and gets upset if other people find out that he is unable to control his bladder. We have been to see a specialist about this and xxxxx has been given an alarm which is attached to his underwear to warn him he’s about to have an accident this is not working all that well and we are still using nappy pants.

The attention xxxxx requires is frequent which means it is required several times a day at intervals spread over the day. I submit that due to his behaviour xxxxx requires substantial attention requirements which a child of the same age in normal physical and mental health would not have.

　

Even though all children his age require some help bathing and washing insufficient weight has been placed on the amount of extra care which I provide which is substantially in excess of the care required by other children his age. He also has atopic eczema which is controlled with creams and lotions I have to administer the treatment which I was shown by his consultant at the hospital this is done on a daily basis so to prevent the skin from breaking. This is an ongoing treatment and there is no prognosis that his condition will improve so this treatment will be administered for the foreseeable future. As stated in the application form I have to bathe xxxx in Aveno oil and apply creams cetreben and elcon ointment each morning and night as well as intervals during the day when he gets itches and I have to apply the creams to stop him from scratching and breaking the skin.

　

　

　

xxxx suffers from insomnia as is has ongoing treatment for this as has been given 3mg Melatonin which I have to give him each night to get him to sleep.

The care that is required during the night for xxxxx is repeated more than twice. xxxxx official bedtime is between 8.00pm and 8.30pm my normal bedtime is around 10pm. xxxxx usually sleeps until around 1am each night and I have to re administer the medication whilst changing him as he is always soiled. Then I then change his bedclothes and bedding and try to soothe him back to sleep this repeated at @2.30am and 4.00am each night. When xxxxx goes to bed at night when he wets himself I spend another hour during the night bathing him again as the urine aggravates his skin condition more as he is incontinent. These bodily functions are frequent.

xxxxx displays frequent obsessive behaviour at present his obsession is with the number 7 days and dates, number of crayons, paper, drinks have to be stirred 7 times, he has to brush his teeth for 7minutes,cleaning his room, has to watch DVDs 7 times then its over with no longer in use in his eyes. He has shut himself in wardrobes and has to stay in there for 7 minutes to see if he will die. He does not understand social relationships and I constantly fear what his actions will be when we venture out as he will run off I have to drive the car with all doors locked as xxxxx has opened to door whilst the car is in motion to see if he will fall out. As well as taking off his seat belt whilst im driving. Each time we go out I have to explain the dangers and no to run off and wait for me to go round to his door and to hold my hand.

I believe that the criteria for disability living allowance care element has been met as xxxxx needs help more than once or for 20minutes or more at night.

yours sincerely

 

Mich7k

[mich7k]

thank you for having a look we went all the way last time and it was stressful they sent me the refusal letter on christmas eve i was so gutted had to go through christmas knowing i have another battle on my hands well im going to send this letter off and see what happens next

[mich7k]

Thanks Priorityone gonna have a bash at it now

[mich7k]

well i tweeked itup abit and i rang the consumer helpline spoke to a representive and she said that the letter sounded ok and more like a personal statement from my heart so i sent it in special delivery cost me £4.99! because they didnt have any recorded delivery slips due to the weather. I'll let you know how i get on