disability living allowance turned down for 5 year old son

[tiglet]

Have they informed you about any appeals process?

[tiglet]

I would wait for the letter - and let us know what it says. You do get ignorant people on the phone and you will ahve a certain amount of time to appeal, which should allow people on here/other agencies to advise you.

[tiglet]

Bookie's right.

[tiglet]

Please do. and good luck.

[tiglet]

You haven't let him down - trust me, the system regarding SEN and other-abled children is very difficult - you are doing what you can and what is right by your son - WORKING THAT SYSTEM AND FIGHTING THAT SYSTEM.

 

You should go to bed tonight proud - you may have lost the first battle but that does not mean you won't win the war.

 

It's deflating, it's hard work and it makes you feel helpless and want to give up - you just need to pick yourself up tomorrow and fight on.

 

You'll get lots of support here - well done you for getting this far without it.

[tiglet]

I know - but some things are more important and you will get them sorted - if you have nay problems with those, let us know and we'll try to help ther too.

[tiglet]

Have you considered contacting some of the asthma charities and asking if there are any funds you can apply to for some financial help?

 

I would also try the national centre for independent living, the shaw trust,the early years centre (nottingham), the children's legal centre and the family fund trust

. some of these may be able to help you with funding - some may be able to give you advice - some may just point you in the right direction for other sources of help.

 

It's amazing what's out there that you don't know about.

[tiglet]

We'll be around - if you have help/representation at the tribunal, you are more likely to be successful, so get as much info/help as you can and make sure you are well-prepared.

[tiglet]

Children with even severe problems learn how to cope in social situations such as school - especially children who are high-functioning autistic children.

 

NEVER blame yourself. You sound like a very caring mother who wants what is best for her child and is tearing herself apart by thinking it is all her fault.

 

I (and I'm sure many others on this forum) have felt the same way. I've been told my son is difficult because I divorced his father (by his reception teacher), I've been told it's my fault he's been difficult because I worked long hours (to keep a roof over his head because of said divorce) - recently his teacher has told me his problems are because he is spoilt because I am there for him all of the time. We parents can't win, can we?

 

My advice to you is simply this: go with your gut feeling. YOU are his mother: YOU are the one who knows your child. Keep fighting and come back on here, or PM me, any time you want a whinge or a moan - it's cathartic to let it out.

 

You are doing everything right - have you tried calling those organisations I mentioned in a previous post? It is amazing what a little practical help and support can do.

 

Good luck!

 

Tigs xxx

[tiglet]

Well, ive sent off for the forms for my eldest and will be following all of the good advice on here and give the worst day, not the best.

 

Good luck with your tribunal!

[tiglet]

I'm praying honey - no advice, I'm afraid, but you'll be in my prayers x