I have heartbreaking news my brother has died
I am well and truly heartbroken
I am finding this difficult to write but i need to write this for my brother,
There has been a catalogue of fatal errors by this gp practice and even by the hospital before/after the sleeping pills that should never have been prescribed.
background prior to the sleeping pill wrongly prescribed
Diagnaosed with vascular dementia 2019
Weight loss reported
NO dysphagia (Without any investigation GP writes NO dysphagia (swallowing difficulties which can lead to aspiration pneimonia, weight loss)
tasked DN team
Referral out Community Referral for Elderly Care
In view of suspected covid infection best to defer weight check/assessment
There was no suspected covid infection, how gp got this? nobody called the gp and it was uk lockdown
Eating & Drinking Complaint
brother eating less and losing weight
Dry cough over night. white phlegm noted
Diagnosis: Viral upper respiratory tract infection
57 Kg weight told Gp over the phone
24 Aug 2020
1 week poor appetite & drowsiness- keeps falling asleep
Decrease in appetite
25 Aug 2020
Reported to GP 6 months of steady weight loss: 14kg (June weight 66, now 50kg)
NO dysphagia (how without investigating further)
If GP had investigated further it would shown my brother had swallowing difficulties which was causing the weigt loss and chest infections.
Presenting complaint (XaIm8) - chesty cough phlem
Diagnosis: Respiratory tract infection
Presenting complaint (XaIm8) - not eating or sleeping
Poor appetite (lost 1 stone since then) and poor sleep
Serious reaaction to sleeping pills - causing 2 litres of uring retention
indwelling catheter as posted in this thread and problems
18 Jun 2021
30 Jun 2021
Diagnossi should finish antibiotics and plenty fluids
Complaint - struggling to swallow large capsules
Weight loss/not eating drinking properly
Requested liquid version or smaller size capsules
complaint - Please see yesterday's entry by and task sent to , sister saying pt hasn't taken Prostate medication for 4/7, urine rention building up, sistrer concerned requesting alternative medication, small tablet form if not available in liquid, sister says it is urgent for today.
Re: patient unable to swallow due to size (approx 24.2mm x 7.7mm SmPC)
10 Jul 2021
Presenting complaint - Please see 09.07.21 entry, patient still struggling to swallow tablet, urine retention building
Nose dripping week, swallowing mucous
For the last week cough with green sputum
Note previous course of antibioitcs in june for chest infection
longstanding swallowing problems - BUT NOT INVESTIGATED!!!!
1 Aug 2021
Feels has chest infection. cough 2 weeks- productive green phelgm
Diagnosis: Chest infection - unspecified bronchitis
10 Aug 2021
blocked sinuses/runny nose
despite 2 x recent antibiotics,just finished amoxicillin
+probable viral infection
no further antibiotics indicated
observe for now
12 Aug 2021
struggling with breathing
sister concerned wanting Gp to review
HOME visit tomorrow
Brother taken to hospital
diagnosed with exacerbation of copd
steroid tablets, antibiotic tablets, antibiotics into vein in arm
struggled to take bloods on 3rd attempt, left with bruised vein
chest xray shows pneumonia
sent home 7 days meds
letter for Gp requests follow up chest xray in 6 weeks (NEVER DONE)
16 Aug 2021
Presenting complaint - discuss ambulance report thinks needs home visit everyday
adv sister is reassuring he did not need nebuliser *brother was put on nebuliser in hospital in august, gp is wrong) A/E attendance likely all related to current LRTI
22 August 2021
Presenting complaint (XaIm8)
Pnemonia. Chest still doesnt sound clear. 1 medication finished today 2 finishing tomorrow - steroids
Home visit done by GP
Chest clear, good AE B/L, no resp distress
HS N, calves SNT, WWP, regular pulse
Diagnosis: Chest infection NOS (XE0Xs)- resolved
24 Aug 2021
Chest clear, good AE b/l
Diagnosis: Hay fever - unspecified allergen (X00l9)
I then made a private appoint with a respitatory consultant, he got access to the chest xray done in August 2021 and told me my brother had pneomnia in the right lung aspiration pneomonia caused by swallowing difficulties, food liquid going down wrong way into the lungs, causing infection leading to pneaomia. This consultant gave a report of findings, also askig GP to make referral to SALTS carry out swallow assessment. This referral was done far too late by the GP over 10 days delay and only after i kept on complaining why wasnt the SALTS team coming and my brother was down to 6stone in weight.
I had to go private consultant for aspiration pneomonia diagnosis on chest xrays done in August 2021 then give that report to GP to make a SALTS referral. The previous chest infections was aspiration pneomonia but GP clearly misdianosed inc on Home Visits after the August 2021 hospital attendance.
19 Sep 2021
wanting to discuss weight loss
Discussed - I will task DNs to carry out these reviews as too weak to come to surgery now. Also check weight/ BP
I will refer to dietitian
Diagnosis: Weight loss - AFTER 12 MONTHS and after lots of complaints GP DECIDES
WEIGHT to 6STONE!! decided referral to diatcian after I tell GP!
22 Sep 2021
Recieved a letter from xyz clinic 2 days ago to ask GP doctor to arrange swallowing assessment about swallowing issues
GP Diagnosis: Swallowing symptoms (XE0r7) - ONLY AFTER WE TELL HIM PRIVATE CONSULTANT FINDNGS. GP did not bother to investigate all the complains I made about swallowing difficultities. I went to private consultant to get dignosis on swallowing problems, despite makings lots of complaints to GP and being ignored. I was doing the Gp's job in getting the diagnosis for swallowing problems!!
24 Sep 2021 SALTS REFERRAL made BY GP - ONLY AFTER I WENT TO PRIVATE CONSULTANT
Please advise pt's daughter that the GP has messaged the secratary to refer the pt to SALTS referral
27 Sep 2021
Presenting complaint - Presenting complaint (XaIm8)
Requesting powder sachets instead of premade shakes. Patient is struggling to swallow these as liquid is rather thick. Family have purchased a few sachets of powder and find these better for him.
Also mentioned patient has lost around 1 stone in weight and are concern.
28 Sep 2021
Presenting complaint - Pt having swallowing issues and pt taking Movicol sachets but still constipated as struggling to swallow down properly. DN
GP DOES Hospital Referral for Feeding/ Swallowing AFTER COMPLAINT MADE
30 Sep 2021
Presenting complaint - Unable to swallow movicol properly therefore family request another enema. requests GP to assess first as has had 2 enemas fairly recently already.
ongoing swallowing issues - sister says losing weight fast. Been referred to SALT & this has been marked as urgent now.
4 October 2021
Presenting complaint - Concerned about ongoing swallowing issues ?chest infection. says chockes whilst drinking ensures- SALT referral sent
E&D less leading to weight loss -Dietician referral sent
Chest clear, good AE B/L
MEDICAL NEGLIGENCE - SEE 5th October!!
(This GP is on audio recording telling us the chest is clear)
5th October follow up appointment with private respitatory consultant
Diagnosis pneomia due to aspiration (swallowing diffuclties/dementia)
Prescribed 4 months of maintenance antibiotics
Diagnosis pneomia when the GP the day before said everything was clear!!
7 Oct 2021
Complaint - Why SALTS team not been for assessment, should be marked urgent brother weigh down to 5.5stone. Says spoke to SALT team last week - will be complaining as SALT referral recieved on 21/9.
Apolagised for this but on system it was actually sent on 19/09/21
Diagnosis: Swallowing (Xa4M7) -> (ignored my complaints for over 2 years on swallowing problems, and put no dyspghia on my brothers record 2 years ago - when swallowing problems were going on even abck then.
10 Oct 2021
Spoke to sister who has spoke to SALT team on 02/10. Felt SALT nurse was rudee.
Says nurse said appointment may take some time ?due to back log of patients in covid period
GP then contacts SALTS team to try expedite appointment
Diagnosis: Speech and language therapy
12 Oct 2021
Private swallowing assessment done by speech therapist because the GP and SALTS were going aound in circles and brother rapidly losing weight!
Private assessment shows serious swallow problem, recommends SALTS team urgent see my brother
15 Oct 2021
Brother coughs up phelhm with blood 1 time in day, reported to GP and request home visit
16 Oct 2021
GP home visit, checks chest, says clear and nothing to worry about - on video
GP says brother has blood clot in lungs, go AE and wait, tell GP brother too frail weak, weight 5stone, unable to wait in AE. Request GP make arrangement for xray, bloods, ecg at hospital so brother no need to wait in AE. GP says NO, you have to wait AE. GP will arrange ambulance to go to AE where you WILL HAVE TO WAIT even if it means waiting 6-7hours. Inform GP this is impossible. GP leaves. Calls back in 20mins says NO BEDS available, you just have to wait in AE if it means waiting 7 hours then just wait. Explain the difficulty dementia, too frail, high risk of catching bug and request GP arrange time for brother to go into hospital for bloods, xray, ecg etc, GP says no. Then turns the conversation around telling me 'so your refusing to take your brother to hpstal, if he dies its your fault, i will put that down on his records'. GP hangs the phone.
10 mins later brother collapses, ambulance called, oxygen given, stats up. Taken into hosital, where immedialtely the staff tell me your brother is emacitated dehyradted way too much, all skin and bones. Tell staff, swallow problems, weight loss, complaints to Gp, Gp not listening etc. Brother kept in overnight put onto IV fluids. Discharged the next day
few days later, brother health deteroriates, paramedics to the home, say its pneomonia, i tell them its aspiration pneonua, they agree, explain the swallow problems, weight loss. They say you need to complain to GP.
Oxygen provided, stats go up, paramedics leave
2hrs later stats drop ambulance called, oxygen given 1hhr stats go up, ambulance staff they cant leave oxygen again because 2nd time called to house. They call GP to house with injections inc morphone, which thankfully were never used. Brother passes way at home
My brother died weight was under 5stone, he was skeletone and bones, weight loss problems, swallowing problems complaints made over 2 years and nothing was done until the last couple of weeks only after I went to private consultant for diagnosis, who sent his report the ignorant gps, the same for the private speech therapist report to gp
Gp only refer to dietiacian when brother weight down under 6 stone!!
In 2 years no demential assessment done, only done last 2 weeks of brothers life after I complained to GP
This is what I can remember, they will be things I have forgot to add.
I am devastated.