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thierrywalt

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  1. I suspect I will find interesting information about my health and it will explain some of the diseases I have. Not enough argument to have my genome sequenced via the NHS though. Also, at the speed that biomedical research is going, everyday new diseases and new predispositions to diseases are being found, and having my genome sequenced is something that I will be checking every now and then and it will acoompany me forever. I truly believe that at the speed things are going, in a few years every human being will have their genome sequenced from birth, and we will tackle diseases much better. I mean, 20 years ago it costed 100 milliond dollar to sequence a human genome. Today it costs 100 dollars.
  2. Because it is not the same thing. ancestry and 23andme and similar services do not do deep genome sequencing. They only sequence 0,02% of your dna, while Nebula sequences 100%. I do not use another UK service because there is no other commercial service available, they are all extremely expensive custom research and medicine services. Can you clarify what is cpa access? I google it but nothing. I can easily block my credit card, but if I do that, as I explained, I am afraid they will not give me access to the finished data, meaning I just lost money (remember I would already have paid for the first service though).
  3. There is this american company that sequences your genome. They charge very little for the sequencing (giving you the raw data), but tie it to mandatory very expensive subscription service (custom reports, analysis, tools). Already this is very weird but well... First you pay for the sequencing. It then takes weeks to complete. Once sequencing is done, they bill for the subscription (lifetime subscription, one-off payment). My problem is that I do not know if I'll be satisfied with the subscription, in fact I don't even need it. I guess I could block my card before they charge for the subscription, but I guess they will then withhold the sequenced data. I asked them if I had a period to retract the subscription if I don't like it, and they say that the 14 day period to get a refund starts when paying for the kit. That means the retraction period will be over long before I get access to the service to be able to evaluate it. They say they are respecting UK and European law. Is there anything I can do about it? I want to purchase the service knowing I will be able to get a refund if I don't like the subscription.
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