Jump to content


  • Tweets

  • Posts

    • The firm has benefited from the AI boom, making it the third-most valuable company in the US.View the full article
    • Former billionaire Hui Ka Yan has been fined and banned from the financial market for life.View the full article
    • In terms of "why didn't I make a claim" - well, that has to be understood in the context of the long-standing legal battle and all its permuations with the shark. In essence there was a repo and probable fire sale of the leasehold property - which would have led to me initiating the complaint/ claim v SPF in summer 19. But there was no quick sale. And battle commenced and it ain't done yet 5y later. A potential sale morphed into trying to do a debt deal and then into a full blown battle heading to trial - based on the shark deliberately racking up costs just so the ceo can keep the property for himself.  Along the way they have launched claims in 4 different counties -v- me - trying to get a backdoor B. (Haven't yet succeeded) Simultaneously I got dragged into a contentious forfeiture claim and then into a lease extension debacle - both of which lasted 3y. (I have an association with the freeholders and handled all that legal stuff too) I had some (friend paid for) legal support to begin with.  But mostly I have handled every thing alone.  The sheer weight of all the different cases has been pretty overwhelming. And tedious.  I'm battling an aggressive financial shark that has investors giving them 00s of millions. They've employed teams of expensive lawyers and barristers. And also got juniors doing the boring menial tasks. And, of course, in text book style they've delayed issues on purpose and then sent 000's of docs to read at the 11th hour. Which I not only boringly did read,  but also simultaneously filed for ease of reference later - which has come in very handy in speeding up collating legal bundles and being able to find evidence quickly.  It's also how I found out the damning stuff I could use -v- them.  Bottom line - I haven't really had a moment to breath for 5y. I've had to write a statement recently. And asked a clinic for advice. One of the volunteers asked how I got into this situation.  Which prompted me to say it all started when I got bad advice from a broker. Which kick-started me in to thinking I really should look into making some kind of formal complaint -v- the broker.  Which is where I am now.  Extenuating circumstances as to why I'm complaining so late.  But hopefully still in time ??  
    • At a key lecture in the City of London, the shadow chancellor will also vow to reform the Treasury.View the full article
    • Despite controversy China's Temu is becoming a global online shopping force.View the full article
  • Recommended Topics

  • Our picks

    • If you are buying a used car – you need to read this survival guide.
      • 1 reply
    • Hello,

      On 15/1/24 booked appointment with Big Motoring World (BMW) to view a mini on 17/1/24 at 8pm at their Enfield dealership.  

      Car was dirty and test drive was two circuits of roundabout on entry to the showroom.  Was p/x my car and rushed by sales exec and a manager into buying the mini and a 3yr warranty that night, sale all wrapped up by 10pm.  They strongly advised me taking warranty out on car that age (2017) and confirmed it was honoured at over 500 UK registered garages.

      The next day, 18/1/24 noticed amber engine warning light on dashboard , immediately phoned BMW aftercare team to ask for it to be investigated asap at nearest garage to me. After 15 mins on hold was told only their 5 service centres across the UK can deal with car issues with earliest date for inspection in March ! Said I’m not happy with that given what sales team advised or driving car. Told an amber warning light only advisory so to drive with caution and call back when light goes red.

      I’m not happy to do this, drive the car or with the after care experience (a sign of further stresses to come) so want a refund and to return the car asap.

      Please can you advise what I need to do today to get this done. 
       

      Many thanks 
      • 81 replies
    • Housing Association property flooding. https://www.consumeractiongroup.co.uk/topic/438641-housing-association-property-flooding/&do=findComment&comment=5124299
      • 160 replies
    • We have finally managed to obtain the transcript of this case.

      The judge's reasoning is very useful and will certainly be helpful in any other cases relating to third-party rights where the customer has contracted with the courier company by using a broker.
      This is generally speaking the problem with using PackLink who are domiciled in Spain and very conveniently out of reach of the British justice system.

      Frankly I don't think that is any accident.

      One of the points that the judge made was that the customers contract with the broker specifically refers to the courier – and it is clear that the courier knows that they are acting for a third party. There is no need to name the third party. They just have to be recognisably part of a class of person – such as a sender or a recipient of the parcel.

      Please note that a recent case against UPS failed on exactly the same issue with the judge held that the Contracts (Rights of Third Parties) Act 1999 did not apply.

      We will be getting that transcript very soon. We will look at it and we will understand how the judge made such catastrophic mistakes. It was a very poor judgement.
      We will be recommending that people do include this adverse judgement in their bundle so that when they go to county court the judge will see both sides and see the arguments against this adverse judgement.
      Also, we will be to demonstrate to the judge that we are fair-minded and that we don't mind bringing everything to the attention of the judge even if it is against our own interests.
      This is good ethical practice.

      It would be very nice if the parcel delivery companies – including EVRi – practised this kind of thing as well.

       

      OT APPROVED, 365MC637, FAROOQ, EVRi, 12.07.23 (BRENT) - J v4.pdf
        • Like
  • Recommended Topics

The government wants to put your lifetime medical records onto a database for research or to sell


honeybee13
style="text-align: center;">  

Thread Locked

because no one has posted on it for the last 916 days.

If you need to add something to this thread then

 

Please click the "Report " link

 

at the bottom of one of the posts.

 

If you want to post a new story then

Please

Start your own new thread

That way you will attract more attention to your story and get more visitors and more help 

 

Thanks

Recommended Posts

The government has quietly introduced these plans and half a million people have already opted out, as many did in 2013. People have until 23rd June to opt out of having their records sold.

 

Here are a couple of articles, one from someone representing GPs and from one of the organisations mounting a court case next week that's trying to at least slow down the process so people can make informed decisions.

 

https://www.theguardian.com/commentisfree/2021/jun/03/gp-nhs-digital-data-patients-records-england

 

https://www.opendemocracy.net/en/ournhs/legal-threat-sharpens-over-uk-government-plans-harvest-patient-data-gps/

 

HB

 

 

  • Like 1
  • Thanks 1

Illegitimi non carborundum

 

 

 

Link to post
Share on other sites

Couple of NHS Link on this matter:

 

WWW.NHS.UK

Information about sharing health records.

 

DIGITAL.NHS.UK

The national data opt-out is a service that allows patients to opt out of their confidential patient information being used for research and planning.

 

  • Thanks 2

How to Upload Documents/Images on CAG - **INSTRUCTIONS CLICK HERE**

FORUM RULES - Please ensure to read these before posting **FORUM RULES CLICK HERE**

I cannot give any advice by PM - If you provide a link to your Thread then I will be happy to offer advice there.

I advise to the best of my ability, but I am not a qualified professional, benefits lawyer nor Welfare Rights Adviser.

Please Donate button to the Consumer Action Group

Link to post
Share on other sites

New article link which is interesting.  "Where the NHS data grab meets the PHE data black hole"

 

Cambridge Analytica on Steroids - Keeping the Receipts (substack.com)

 

Personally, I am not fully aware of the list of pros & cons to make any judgement on this issue.  

 

The crucial question for me would be.  Does the provision of this data improve the planning and provision of health services, medicines etc ? 

 

 

We could do with some help from you.

PLEASE HELP US TO KEEP THIS SITE RUNNING EVERY POUND DONATED WILL HELP US TO KEEP HELPING OTHERS

 

 Have we helped you ...?         Please Donate button to the Consumer Action Group

 

If you want advice on your thread please PM me a link to your thread

Link to post
Share on other sites

I don't think you're going to get an answer on what they will do with your data. It went wrong last time because they issued flyers and 2 million people objected so this time they're doing it almost by stealth.

 

Another article.

 

WWW.THEGUARDIAN.COM

We need more transparency before offering up our health information

 

  • I agree 1

Illegitimi non carborundum

 

 

 

Link to post
Share on other sites

  • 2 weeks later...

Thanks for posting this Honeybee I am surprised there arent more comments on this thread

 

Regarding that pause, and extension from deadline - there isn't even clarity on this

 

on the NHS digital site - https://digital.nhs.uk/data-and-information/data-collections-and-data-sets/data-collections/general-practice-data-for-planning-and-research

it says 1sep , but that is the collection date , (ie the original collection date was due to be 1 july, with the 23rd june deadline for patients)

 

I get various dates of 1st Sept,   25th augusts (https://www.medicaldevice-network.com/features/nhs-data-grab-gpdpr/)  and 23rd August

Link to post
Share on other sites

Hi Todd.

 

You're right, it's a matter of great concern. As you say, the latest date seems to be around 23rd August and opting out on 1st September will be too late.

 

The Citizens and other groups, who are trying to contest this with public contributions, have issued an update today.

 

WWW.CROWDJUSTICE.COM

Just Treatment, Doctors’ Association UK, the Citizens, openDemocracy, and the National Pensioners Convention and David Davis MP, are the...

HB

 

 

 

  • Thanks 1

Illegitimi non carborundum

 

 

 

Link to post
Share on other sites

I just phone up my GP to ask what to do - they gave me the link to register online

 

But they had no clue about the  Type-1 opt-out   (which is a note added to the patient record to prevent data grab)

 

The national opt-out and type-1 opt out are two separate things . So I filled out a form for type-1 (link below) and took it in to GP by hand . There was still confusion about what it was, one of the staff said i didnt need it and could just do it on line, and the other said it was a new thing (even though it dates from at least 2014). I feel for them - they have a lot of pressure with COVID etc but no information.

 

Co-incidently, someone else came in with the opt out form at the same time as me

 

here is a link to the explanation and what to do: https://medconfidential.org//how-to-opt-out/

 

 

Edited by Todd from Toddmorden
Link to post
Share on other sites

My surgery didn't know much about it either. The first lady asked me where I'd seen information that this was happening and sounded suspicious. When I said it was in the Guardian I think she was quite surprised.

Illegitimi non carborundum

 

 

 

Link to post
Share on other sites

From what I am hearing from some WhatsApp app groups, many people who are quite level headed are looking to opt out from this data sharing.

 

 

We could do with some help from you.

PLEASE HELP US TO KEEP THIS SITE RUNNING EVERY POUND DONATED WILL HELP US TO KEEP HELPING OTHERS

 

 Have we helped you ...?         Please Donate button to the Consumer Action Group

 

If you want advice on your thread please PM me a link to your thread

Link to post
Share on other sites

Some doctors already have, UB.

 

I said before that last time, about two million people opted out and it put a stop to the data grab. This time, they've tried to sneak it out so people wouldn't have the chance to opt out and indeed, today would have been the last chance to do that.

 

Thanks to the court case, we get another couple of months.

 

HB

Illegitimi non carborundum

 

 

 

Link to post
Share on other sites

I have no problem with them sharing my data. 

 

I think that my data will be shared, even if I opted out.

 

 

We could do with some help from you.

PLEASE HELP US TO KEEP THIS SITE RUNNING EVERY POUND DONATED WILL HELP US TO KEEP HELPING OTHERS

 

 Have we helped you ...?         Please Donate button to the Consumer Action Group

 

If you want advice on your thread please PM me a link to your thread

Link to post
Share on other sites

If you're happy, UB, that's fine.

 

I probably posted this somewhere else, it's by someone who worked on the last data grab. Just reposting it in case people would like more details.

 

BYLINETIMES.COM

Robin Burgess, who witnessed the chaos of the 'care.data' scheme eight years ago, sees the same lack of consent, trust and engagement in its most...

 

Illegitimi non carborundum

 

 

 

Link to post
Share on other sites

Here's another article from openDemocracy who are involved in the court case.

 

WWW.OPENDEMOCRACY.NET

The health secretary says his plans will put us in control of our health data and suggests no one but our clinicians will see it. But he’s either lying or...

HB

 

  • I agree 1

Illegitimi non carborundum

 

 

 

Link to post
Share on other sites

So the title of this thread is ''The government wants to put your lifetime medical records onto a database for research or to sell', but the banner on the forum home page promoting the thread says ''Are you happy that your personal medical details are sold to industry''.

 

Is the latter click bait, left wing propaganda or just BS?

Link to post
Share on other sites

Probably just BS

Link to post
Share on other sites

  • 2 weeks later...
  • 1 month later...
  • 1 month later...
Link to post
Share on other sites

@McKinley
was not clear, so I google it. NHS Digital is only for NHS England.

 

NHS Scotland is totally separate, so not need to go through this opt out process.

 

 

We could do with some help from you.

PLEASE HELP US TO KEEP THIS SITE RUNNING EVERY POUND DONATED WILL HELP US TO KEEP HELPING OTHERS

 

 Have we helped you ...?         Please Donate button to the Consumer Action Group

 

If you want advice on your thread please PM me a link to your thread

Link to post
Share on other sites

  • Recently Browsing   0 Caggers

    • No registered users viewing this page.

  • Have we helped you ...?


×
×
  • Create New...