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The government wants to put your lifetime medical records onto a database for research or to sell


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The government has quietly introduced these plans and half a million people have already opted out, as many did in 2013. People have until 23rd June to opt out of having their records sold.

 

Here are a couple of articles, one from someone representing GPs and from one of the organisations mounting a court case next week that's trying to at least slow down the process so people can make informed decisions.

 

https://www.theguardian.com/commentisfree/2021/jun/03/gp-nhs-digital-data-patients-records-england

 

https://www.opendemocracy.net/en/ournhs/legal-threat-sharpens-over-uk-government-plans-harvest-patient-data-gps/

 

HB

 

 

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Illegitimi non carborundum

 

 

 

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Couple of NHS Link on this matter:

 

WWW.NHS.UK

Information about sharing health records.

 

DIGITAL.NHS.UK

The national data opt-out is a service that allows patients to opt out of their confidential patient information being used for research and planning.

 

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I advise to the best of my ability, but I am not a qualified professional, benefits lawyer nor Welfare Rights Adviser.

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New article link which is interesting.  "Where the NHS data grab meets the PHE data black hole"

 

Cambridge Analytica on Steroids - Keeping the Receipts (substack.com)

 

Personally, I am not fully aware of the list of pros & cons to make any judgement on this issue.  

 

The crucial question for me would be.  Does the provision of this data improve the planning and provision of health services, medicines etc ? 

 

 

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I don't think you're going to get an answer on what they will do with your data. It went wrong last time because they issued flyers and 2 million people objected so this time they're doing it almost by stealth.

 

Another article.

 

WWW.THEGUARDIAN.COM

We need more transparency before offering up our health information

 

Illegitimi non carborundum

 

 

 

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The process has been paused until 1st September to allow for more consultation. It's only paused though, they still plan to go ahead.

 

HB

Illegitimi non carborundum

 

 

 

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