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GP Negligence prescribed sleeping pills which caused urine retention and an indwelling catheter to be put in - Quality of life ruined by GP negligence!!


linzie
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38 minutes ago, linzie said:

The Gp has never said they think there is no capacity.


Have they agreed he has capacity, though?

 

If not, that may be why they aren’t discussing it ……..

Edited by BazzaS
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Hi

 

I do again have to agree with BazzaS on this.

 

Irrespective that you state the GP has never said they think there is no capacity have you actually confirmed this in writing with the GP that your Brother has Capacity and more importantly your Brother has Capacity to understand and sign letters/Documents.

 

Without Power of Attorney nor Deputyship in place and with your Brother having a Diagnosis of Dementia you are going to find it very difficult to deal with your Brothers affairs properly right down to this Medical issue with the GP.

 

I am afraid and if you do not answers the questions asked of you properly it is going to be very difficult to assist you.

 

 

 

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  • 2 weeks later...

I have heartbreaking news my brother has died 😪

I am well and truly heartbroken😪

I am finding this difficult to write but i need to write this for my brother,

There has been a catalogue of fatal errors by this gp practice and even by the hospital before/after the sleeping pills that should never have been prescribed.

 

background prior to the sleeping pill wrongly prescribed

 

Diagnaosed with vascular dementia 2019

 

May 2020  
Weight loss reported
NO dysphagia (Without any investigation GP writes NO dysphagia (swallowing difficulties which can lead to aspiration pneimonia, weight loss)

Prescribed ensure

 

Jun 2020  
weight/diet/nutritional assessment

tasked DN team    
Referral out    Community Referral for Elderly Care

 

june 2020

In view of suspected covid infection best to defer weight check/assessment
There was no suspected covid infection, how gp got this? nobody called the gp and it was uk lockdown

 

Jul 2020

Eating & Drinking Complaint

brother eating less and losing weight

 

Jul 2020
Dry cough over night. white phlegm noted
Diagnosis: Viral upper respiratory tract infection

 

 

Jul 2020   
57 Kg weight told Gp over the phone

 

24 Aug 2020 
1 week poor appetite & drowsiness- keeps falling asleep
Decrease in appetite

 

25 Aug 2020
Reported to GP 6 months of steady weight loss: 14kg (June weight 66, now 50kg)
NO dysphagia (how without investigating further)

If GP had investigated further it would shown my brother had swallowing difficulties which was causing the weigt loss and chest infections.

 

Feb 2021
Presenting complaint (XaIm8) - chesty cough phlem
Diagnosis: Respiratory tract infection

 

 

Mar 2021 
Presenting complaint (XaIm8) - not eating or sleeping
Poor appetite (lost 1 stone since then) and poor sleep

 

April 2021

Serious reaaction to sleeping pills - causing 2 litres of uring retention

indwelling catheter as posted in this thread and problems

 

18 Jun 2021

chest infection

 

30 Jun 2021 
Chest Ingection
Diagnossi should finish antibiotics and plenty fluids

 

7Jul 2021

Complaint - struggling to swallow large capsules

Weight loss/not eating drinking properly

Requested liquid version or smaller size capsules

 

9 July

complaint - Please see yesterday's entry by and task sent to , sister saying pt hasn't taken Prostate medication for 4/7, urine rention building up, sistrer concerned requesting alternative medication, small tablet form if not available in liquid, sister says it is urgent for today.
Re: patient unable to swallow due to size (approx 24.2mm x 7.7mm SmPC)

 

10 Jul 2021   
Presenting complaint  - Please see 09.07.21 entry, patient still struggling to swallow tablet, urine retention building
 

July 2021

Nose dripping week, swallowing mucous
For the last week cough with green sputum
Note previous course of antibioitcs in june for chest infection
longstanding swallowing problems - BUT NOT INVESTIGATED!!!!

 

1 Aug 2021
Feels has chest infection. cough 2 weeks- productive green phelgm
Diagnosis: Chest infection - unspecified bronchitis

 

10 Aug 2021  
blocked sinuses/runny nose
despite 2 x recent antibiotics,just finished amoxicillin
+probable viral infection
no further antibiotics indicated
observe for now

 

12 Aug 2021
Presenting complaint
struggling with breathing
sister concerned wanting Gp to review
HOME visit tomorrow

 

13 August

Brother taken to hospital

diagnosed with exacerbation of copd

steroid tablets, antibiotic tablets, antibiotics into vein in arm

struggled to take bloods on 3rd attempt, left with bruised vein

chest xray shows pneumonia

sent home 7 days meds

letter for Gp requests follow up chest xray in 6 weeks (NEVER DONE)

 

18 August

16 Aug 2021  
Presenting complaint - discuss ambulance report thinks needs home visit everyday
adv sister is reassuring he did not need nebuliser *brother was put on nebuliser in hospital in august, gp is wrong) A/E attendance likely all related to current LRTI

 

 

22 August 2021

Presenting complaint (XaIm8)
Home visit
Pnemonia. Chest still doesnt sound clear. 1 medication finished today 2 finishing tomorrow - steroids
Home visit done by GP

Chest clear, good AE B/L, no resp distress
HS N, calves SNT, WWP, regular pulse
Abdomen SNT
Diagnosis: Chest infection NOS (XE0Xs)- resolved

 

24 Aug 2021 

Home visit
Chest clear, good AE b/l
Diagnosis: Hay fever - unspecified allergen (X00l9)

 

I then made a private appoint with a respitatory consultant, he got access to the chest xray done in August 2021 and told me my brother had pneomnia in the right lung aspiration pneomonia caused by swallowing difficulties, food liquid going down wrong way into the lungs, causing infection leading to pneaomia. This consultant gave a report of findings, also askig GP to make referral to SALTS carry out swallow assessment. This referral was done far too late by the GP over 10 days delay and only after i kept on complaining why wasnt the SALTS team coming and my brother was down to 6stone in weight.

I had to go private consultant for aspiration pneomonia  diagnosis on chest xrays done in August 2021 then give that report to GP to make a SALTS referral. The previous chest infections was aspiration pneomonia but GP clearly misdianosed inc on Home Visits after the August 2021 hospital attendance.

 

WEIGHT COMPLAINT!!
19 Sep 2021  
Presenting complaint
wanting to discuss weight loss

Discussed - I will task DNs to carry out these reviews as too weak to come to surgery now. Also check weight/ BP
I will refer to dietitian
Diagnosis: Weight loss - AFTER 12 MONTHS and after lots of complaints GP DECIDES

WEIGHT to 6STONE!! decided referral to diatcian after I tell GP!

 

22 Sep 2021   
Recieved a letter from xyz clinic 2 days ago to ask GP doctor to arrange swallowing assessment about swallowing issues
GP Diagnosis: Swallowing symptoms (XE0r7) - ONLY AFTER WE TELL HIM PRIVATE CONSULTANT FINDNGS. GP did not bother to investigate all the complains I made about swallowing difficultities. I went to private consultant to get dignosis on swallowing problems, despite makings lots of complaints to GP and being ignored. I was doing the Gp's job in getting the diagnosis for swallowing problems!!

 

24 Sep 2021 SALTS REFERRAL made  BY GP - ONLY AFTER I WENT TO PRIVATE CONSULTANT
Please advise pt's daughter that the GP has messaged the secratary to refer the pt to SALTS referral

 

 

27 Sep 2021
Presenting complaint - Presenting complaint (XaIm8)
Requesting powder sachets instead of premade shakes. Patient is struggling to swallow these as liquid is rather thick. Family have purchased a few sachets of powder and find these better for him.
Also mentioned patient has lost around 1 stone in weight and are concern.

 

28 Sep 2021
Presenting complaint - Pt having swallowing issues and pt taking Movicol sachets but still constipated as struggling to swallow down properly. DN

 

GP DOES Hospital Referral for Feeding/ Swallowing AFTER COMPLAINT MADE

 

30 Sep 2021   
Presenting complaint - Unable to swallow movicol properly therefore family request another enema. requests GP to assess first as has had 2 enemas fairly recently already.
ongoing swallowing issues - sister says losing weight fast. Been referred to SALT & this has been marked as urgent now.

 

4 October 2021   
Presenting complaint - Concerned about ongoing swallowing issues ?chest infection. says chockes whilst drinking ensures- SALT referral sent
E&D less leading to weight loss -Dietician referral sent
Patent airways
Chest clear, good AE B/L

MEDICAL NEGLIGENCE - SEE 5th October!!

(This GP is on audio recording telling us the chest is clear)

 

5th October follow up appointment with private respitatory consultant

Diagnosis pneomia due to aspiration (swallowing diffuclties/dementia)

Prescribed 4 months of maintenance antibiotics

Diagnosis pneomia when the GP the day before said everything was clear!!

 

 

7 Oct 2021  
Complaint - Why SALTS team not been for assessment, should be marked urgent brother weigh down to 5.5stone. Says spoke to SALT team last week - will be complaining as SALT referral recieved on 21/9.
Apolagised for this but on system it was actually sent on 19/09/21
Diagnosis: Swallowing (Xa4M7) -> (ignored my complaints for over 2 years on swallowing problems, and put no dyspghia on my brothers record 2 years ago - when swallowing problems were going on even abck then.

 

10 Oct 2021  
Spoke to sister who has spoke to SALT team on 02/10. Felt SALT nurse was rudee.
Says nurse said appointment may take some time ?due to back log of patients in covid period
GP then contacts SALTS team to try expedite appointment
Diagnosis: Speech and language therapy

 

 

12 Oct 2021

Private swallowing assessment done by speech therapist because the GP and SALTS were going aound in circles and brother rapidly losing weight!

Private assessment shows serious swallow problem, recommends SALTS team urgent see my brother

 

15 Oct 2021

Brother coughs up phelhm with blood 1 time in day, reported to GP and request home visit

 

16 Oct 2021

GP home visit, checks chest, says clear and nothing to worry about - on video

GP says brother has blood clot in lungs, go AE and wait, tell GP brother too frail weak, weight 5stone, unable to wait in AE. Request GP make arrangement for xray, bloods, ecg at hospital so brother no need to wait in AE. GP says NO, you have to wait AE. GP will arrange ambulance to go to AE where you WILL HAVE TO WAIT even if it means waiting 6-7hours. Inform GP this is impossible. GP leaves. Calls back in 20mins says NO BEDS available, you just have to wait in AE if it means waiting 7 hours then just wait. Explain the difficulty dementia, too frail, high risk of catching bug and request GP arrange time for brother to go into hospital for bloods, xray, ecg etc, GP says no. Then turns the conversation around telling me 'so your refusing to take your brother to hpstal, if he dies its your fault, i will put that down on his records'. GP hangs the phone.

 

10 mins later brother collapses, ambulance called, oxygen given, stats up. Taken into hosital, where immedialtely the staff tell me your brother is emacitated dehyradted way too much, all skin and bones. Tell staff, swallow problems, weight loss, complaints to Gp, Gp not listening etc. Brother kept in overnight put onto IV fluids. Discharged the next day

 

few days later, brother health deteroriates, paramedics to the home, say its pneomonia, i tell them its aspiration pneonua, they agree, explain the swallow problems, weight loss. They say you need to complain to GP.

 

Oxygen provided, stats go up, paramedics leave

2hrs later stats drop ambulance called, oxygen given 1hhr stats go up, ambulance staff they cant leave oxygen again because 2nd time called to house. They call GP to house with injections inc morphone, which thankfully were never used. Brother passes way at home

 

My brother died weight was under 5stone, he was skeletone and bones, weight loss problems, swallowing problems complaints made over 2 years and nothing was done until the last couple of weeks only after I went to private consultant for diagnosis, who sent his report the ignorant gps, the same for the private speech therapist report to gp

 

Gp only refer to dietiacian when brother weight down under 6 stone!!

In 2 years no demential assessment done, only done last 2 weeks of brothers life after I complained to GP

 

This is what I can remember, they will be things I have forgot to add.

I am devastated.

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Edited by linzie
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My brother has unfortunately passed away, the last complaint I sent to the GP they claim they did not received!. How do I now format the complaint given the change of circumstances with my brothers passing.

 

I need to address

 

1. The sleeping pills prescribed which caused urine rentention, the rational behind prescribing them, was the GP aware they should never have prescribed them?

 

2. My brothers weight loss reported to Gp 2-3 years ago and no investigations ever done upto the day he died actioned by the Gp. Brother passed away weighing 4stone! Never did the gp that did home visits say anything about it. The Gp put no dysphagia (no swallowing problems) without even investigating on my brothers records.

 

3. 2nd Gp put patient has swallow problems on brothers records - but never investigated

 

3. Swallowing problems chocking on capsules/medications, made complaints to the gp practice over phone, never was swallowing problems ever investigated by the gp.

 

4. Several chest infections last 12-18 months - gp never requested chest xray if they did they would have found aspiration pneumonia

 

5. Why did the Gp ONLY put swallowing problems/refer to SALTS/Dietician ONLY after I had to go to a private consultant who diagnosed aspiration pnemonoia, caused by swallowing extreme problems, which caused the weight loss and pnenomnia from which he passed away.

 

6. Why didn't the hospital treat my brothers pneomnia a week before he died but instead put him on 12 hours of drips for dehydration and sent him home next day with liquid antibiotics for the pnemonia, they should have treated the pneumia.

 

swallowing problems (dysphagia) caused weight loss caused the aspiration pnemonia as brother has dementia and swallow problems is common BUT gp ever address my complaints about the weight loss. swallowing problems or the chest infection which was aspiration pneomonia (private cosnultant diagnosed aspiration pnemonia) in July and upto the day my brother died the GP that checked my bother severeal times at home, kept telling us the chest/lungs were clear!!

On (date) the GP came home visit and said brothers chest/lungs clear don't worry and I happened to have private consulation the next day with respititory consultant and he said your brother has pnemonia in lungs due to swallow problems!! Is this 1 example of Gp negligiince?

 

Please someone help me with a letter, the gp negligence has robbed me of my brother who has passed away

Edited by linzie
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You keep posting here (lots!) about help with a letter, but haven’t really engaged with the advice given.

 

A print out of what you have said here, with a list of the questions you want answered should suffice as “the letter”.

you’ve expressed yourself adequately here, and any complaint letter doesn’t have to be word perfect : just set out what you believe the problems to have been, and what you want done about it.

 

see posts #27, #43, #47

 

You don’t have any more rights (automatically) now your relative has died (in fact, fewer automatically, as they now can’t consent which they could have done before (if competent)).

what may give you rights is if you are a beneficiary of their estate, or an executor of their will ; if you are a beneficiary and not an executor, you’ll need a letter stating why you have authority from the executor of the estate.

 

What will you do if the reply comes back “they died of dementia and poor nutrition due to the dementia”?

Edited by BazzaS
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What will you do if the reply comes back “they died of dementia and poor nutrition due to the dementia”?

They died for swallowing problems which caused the weight loss which caused the pnemonia, all complaints made to the gp 2-3 years and upto the days before he passed away never investigated, maybe if the gp investigated the cause of swallow problems 2-3 years ago, or what was causing the weight loss 2-3 years then the outcome would have been different

 

Plus its medically known that people do not die from Dementia, they die with it due to other complications which in my brothers was pneomnia caused by the swallowing problems led to food going down into the lungs and the weight loss was also caused by swallow problems, not being able to have enouygh food/liquids ALL gnored 2-3 years upto the day he died by the gps

Edited by linzie
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Which doesn’t (fitting the pattern of your previous posts!) address the issue(s) I’ve raised.

 

What does the (Dr issued) death certificate say (the medical certificate of cause of death : MCCOD - the one that gets taken to the Registrar to register the death), IF one has been issued (& who by?).


I’m aware most people with dementia die of a condition caused by the dementia, rather than the dementia itself.

So, the MCCOD likely won’t have dementia at 1(a), but I bet it features in 1(b) or 1(c), rather than in section 2 (or not featuring at all!)

 

Not all deaths (outside hospital) are yet being scrutinised by a Medical Examiner.

IF your relative’s death is being scrutinised by a (RCPath)ME, have you made your concerns known to the ME? (Or to the ME’s Officer - the MEO)?

 

If you believe the death was caused by neglect / negligence by the GP, have you asked for the death to be referred to Her Majesty’s Coroner (or spoken to the Coroner’s officer)?

Edited by BazzaS
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What will you do if the reply comes back “they died of dementia and poor nutrition due to the dementia”?

 

Medically nobody dies from dementia 100% but from other complications such as malnutrition

 

1. Pnemonia

2. malnutrition

 

Thats what should be on the death certificate.

The Gp is covering their own back by putting vascular dementia in point 2 on the death certigicate, rather than malnutrition - due to gp negligence

 

 

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GP receptionist put derogatory remarks on my fathers medical records for the call i made asking for an explanantion why dementia was on point 2 on the death certificate, I explained dementia has been medically never caused death itself in anyone, so why was it put and I asked to speak to the gp.

 

Receptionist told me the gp that did the death certificate would call the next day, which she did not. The gp receptionist should have addressed the issues trhough the appropriate channels, not through on my dads medical records - describing the phone conversation and how she felt about it, like she felt upset etc 

 

She should not have put these notes on, nothing related to health

 

 

 

 

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On 23/10/2021 at 12:59, BazzaS said:

If you believe the death was caused by neglect / negligence by the GP, have you asked for the death to be referred to Her Majesty’s Coroner (or spoken to the Coroner’s officer)?


Linzie:

 

almost a week on.

no reply regarding the most pressing point.

 

Is it that you just want to “vent” on this thread rather than wanting advice on the issues you state you want advice on?

 

That is fine if it is the case, but then people can choose if they want to spend time answering your questions, or just agree with you how awful it is………..

 

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