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Erasing Medical History ?

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If you wanted to erase your medical history - or certain parts - is there any way to do it without moving from the UK altogether ?

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If you wanted to erase your medical history - or certain parts - is there any way to do it without moving from the UK altogether ?

 

You can't erase your medical history.

 

You can lie to your insurers / employer's occupational health / driving licence authority : but it will likely rebound on you when caught out.

 

In what way (& why) do you want to "erase your medical history"?

 

I can think of one specialist area where people can attend and it be anonymous / not fed back to their GP : sexual health, where the records are protected by statute law / criminal sanctions.

Even then they'll often advise patients to inform their GP of some diagnoses - where the GP's management / prescribing needs to alter as a result of the diagnosis!

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Your medical records are generally protected by the DPA however diclosure can be made without your consent

 

HERE

 

In situations where you are trying to get travel insurance, you will have to give consent for the insurer to check your medical record for undisclosed material when you applied for the insurance.

 

If a GP or consultant is asked to disclose without your permission, they 'should' contact you to inform you of the fact.

 

For other situations refer to the link above and this link

 

http://www.gmc-uk.org/guidance/ethical_guidance/confidentiality.asp


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If you wanted to erase your medical history - or certain parts - is there any way to do it without moving from the UK altogether ?

 

 

In short, you can't erase/amend it. Even when we have patients moving overseas we quite often get approached by their new medical centre to provide at least a summary.

 

Even when patients do move overseas their actual paper records are returned to patient record stores to await their potential return. Only ten years after death are they destroyed.

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I'm wondering the same. Mainly because from what I've seen (and have been told by my parents) a lot of the medical professionals think I'm a hypochondriac. It turns out at least once, they told my parents a pretty big lie.

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I'm wondering the same. Mainly because from what I've seen (and have been told by my parents) a lot of the medical professionals think I'm a hypochondriac. It turns out at least once, they told my parents a pretty big lie.

 

When reading my notes once I noticed that for a whole year when I was 9 years old , I was referred to as a "he" :(


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I think one of the issues is that unless a definitive diagnosis is possible through quantatative testing like actual images, blood/urine etc then a diagnosis is clinical. There's an expectation that even in the absence of such definitive results that the clinician will draw on his/her experience and training and will give an impression of what they feel is happening. You might agree with it, you might not but even then it forms part of your records. Whether that be misdiagnosis or lies as you say it's still a valid record of your treatment and could help to inform your current clinicians decision making.


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This has been my problem even with a diagnosis ( i have a rare disease ) wildly misdiagnosed is that there is no effective treatment here in the UK - or approved methods that help so I've had to resort to my own which they label " self harming " . They do this because its an improvised version of this treatment I need in the US and because Im self taught .I was doing that for almost 20 yrs until my landlord ( mother )grassed me to doc and kicked me out.

 

Im trying to find somewhere but on DSS theres zit so I've had to resort to lodge before I get any worse and patch myself up in hope my passport comes so I can go to US and in meantime find somewhere in the UK

 

Thoughts ?

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If I were to move elsewhere like England what are the chances those aware of my history here would look up nationwide E records and involve English police / authorities to monitor me if they could not find an address under my name or clinic I had joined with ?

 

Would this also apply in another region / health board in Scotland ?

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This has been my problem even with a diagnosis ( i have a rare disease ) wildly misdiagnosed is that there is no effective treatment here in the UK - or approved methods that help so I've had to resort to my own which they label " self harming " . They do this because its an improvised version of this treatment I need in the US and because Im self taught .I was doing that for almost 20 yrs until my landlord ( mother )grassed me to doc and kicked me out.

 

Im trying to find somewhere but on DSS theres zit so I've had to resort to lodge before I get any worse and patch myself up in hope my passport comes so I can go to US and in meantime find somewhere in the UK

 

Thoughts ?

 

what are you self-medicating with?.

Is your underlying disease chronic Lyme or an equivalent Borrelial disease?

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what are you self-medicating with?.

Is your underlying disease chronic Lyme or an equivalent Borrelial disease?

 

I have a few things going on but my main issue is usually genetic and affects my connective tissue like a cancer so I cant move without hurting myself .

 

No meds - I used something else in small doses I discovered by chance .

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Of course we are all interested to know what you are self-medicating with?

 

 

You are rather in a catch 22 situation. If you go to the US (is this 'medicine' not seen as harmful there?) and need hospital treatment for this problem, or any other, then you would be in a difficult position financially. If you buy insurance before you go and lie to obtain it, it would be invalid anyway.

 

 

Your question about erasing your medical history made me wonder whether those treated in private hospitals have their data fed back to their GP - with or without consent. Personally, I feel it would be (mostly) in the patient's interest to have a full record of medical history at one central point - but does the patient get a choice?

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Your question about erasing your medical history made me wonder whether those treated in private hospitals have their data fed back to their GP - with or without consent. Personally, I feel it would be (mostly) in the patient's interest to have a full record of medical history at one central point - but does the patient get a choice?

 

Private treatment can only be notified to your GP with your consent. I have private cover through my husband's employer and everyone I've seen has always asked permission to send results etc to my GP.


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Interesting to know. I believe the question should always be asked, never assumed.

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I think the OPs ' self medication' may be increasing his paranoia and psychotic symptoms ...

 

I also suspect the 'medication' he is the Schedule 1 CD but cat B MDA one ...

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Interesting that this thread should be resurrected after I read this a few days ago: http://www.theguardian.com/politics/2013/aug/01/patient-legal-battle-medical-records

 

It got me thinking about my own records and how in reality, there's lots of distressing things on there from cancer scares to the loss of a child and two brothers, major surgery and a catalogue of medication used to make my conditions manageable. None of it is particularly happy or easy to think about but the truth is that it forms part of a record of my mental and physical wellbeing which may one day be of use to someone treating me. I'm caused significant distress by the copy of my little girl's autopsy report that's on there, but it's relevant if my son ever has any concerns over his health and genetics, the images of a significant injury don't make for easy viewing either but if in the future I need further surgery then I'd like to think that the surgeon knows what they're getting themselves into, I'm sure my mental health records following multiple losses in my close family aren't exactly the image of stability but again, should I need more help it'd be great if they knew where the issues lay. Working in General Practice means I see thousands of people's records, none of them - besides the good news stuff like successful ivf etc make for easy reading but should that mean we delete the difficult bits? I don't think so.


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No problem if they are secure, although as I've said in another post, I doubt whether they are ever read properly or even at all (by the medics treating us). What would you feel if your information was stolen/leaked and then sold on (and on and on) to be exploited by everyone from charities to insurance companies and the like?

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Knowing how much security exists around the IT side of things, I'm perfectly happy where they are - and there are worse things to lose than a bunch of relatively meaningless to anyone else notes. We already get profiled with our Tesco points cards / bank cards etc so it's unlikely that my medical notes would add anything of value. It's far more advantageous to go after my 'identity' than it is my history. Besides, I already get hassled by just about every charity / company selling something at the moment, so an increase in background noise is more of an inconvenience to my spam filter than it would be to me.

 

I see every day how the notes are used, and I wouldn't have a clinician without them.

 

I'm not sure who'd want to buy them either, so Mr. TAI, dead kid insurance? Err, no thanks... What about a nice comfy chair for your bad back? Nope... Got one of them already. Okay, how about some feeling a bit low insurance? Nah, really, you're fine.

 

Life insurance companies frequently, with patient's permission, require / obtain copies of full medical records as part of the underwriting process anyway and as its often done in the form of a subject access request often represent a significant burden on the practice in doing so. The maximum of £50 in no way covers two days of secretarial time standing at a photocopier copying reams of notes for us then to have to send them via special delivery to get tracking information. It's a massive cost to the practice in terms of time, consumables and postage every time - it'd be easier in some respects if they did have them. Especially for the NHS.


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Aren’t your medical notes part of your identity, containing your NHS number, your name, your address, your dob.

 

You and I are not vulnerable, but may well be one day. Spam and cold calls may be just an annoyance to you to just bat away, but many others will be sucked in/scared into buying insurance or ergonomic armchairs that they cannot afford and/or do not need.

 

The CIA, Talk Talk, the NHS, Sony (the list is long), all who thought they were impenetrable, have ‘lost’ data one way or another. I have seen how feeble some companies network security is. There is too much complacency, a deficiency of skill and a startling lack of integrity when it comes to organisations protecting personal information. Remember, once out there, it’s out there for life. There’s a difference between having a loyalty card (not a fan myself, but still cannot be legally sold on without consent) knowing that you are being profiled for a few pounds off your shopping bill and private information given in confidence being disseminated without your consent. Personal data is a gold-mine for companies, which explains why every Tom, Dick and Harry is trying to get hold of it. Even a DIY store wanted a dob to buy a bathroom. Why?

Even life insurance companies cannot carry out a Subject Data Access without your explicit consent.

 

 

And when was the last time your work's network security was tested?

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Interesting to know. I believe the question should always be asked, never assumed.

 

 

Sali I have a bit more info on this I will post it on the thread about care.data as its more relevant there

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