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    • I received PCN's from TFL and Southwark. 08/06/19   I spoke with Southwark regarding PCN's and thought it was sorted.   Didn't hear anything back until 17/01/20 when my car was taken by Marston EA.   TFL & Marston say they sent letters but have no proof.   I emailed TFL (19th June) through their online portal and again, via email on (14th Nov 2019) < the email on 14th has been viewed 17 times but no reply.   (so I have proof of contact, they don't) I asked them if they send via recoded delivery/signed for but they do not.   When my car was taken, I received a call from a friend saying it's on the back of a truck, outside his house (which is round the block from mine).   I ran round there and the EA was aggressive, shouted at me and refused to show ID/why he had taken my car.   I complained to Marston who denied it but sent me some of the footage.   I complained again through resolver.co.uk and Marston lied again.   Then I sent ALL my info and evidence etc.   They then took a few weeks and called me saying sorry and taking full responsibly for their EA's aggressive behaviour etc.   TFL are still refusing to comment.   Marston offered me £250 as a goodwill payment but obviously the pain and trauma causes - that doesn't cover it.   The police were called when they took my car cause I was so distressed and having a panic attack etc.   I've requested the phone call recording where they accepted guilt and that they had handled everything badly, including lying about the video on Resovler.   I feel like Marston know they've done wrong, but TFL still aren't in the know. (to my knowledge)   Also, I requested info from TFL via whatdotheyknow.com and TFL did a data protection breach by uploading my full details including address etc. to a public forum (and I didn't even ask anything specific about my case) so I feel like they did this out of spite/anger.   the www.whatdotheyknow.com team reprimanded them for this and advised me to complain.   I also paid £800+ to retrieve my vehicle and I have completed the OOT which was denied. I tried to take it to court but when I tried to do the 'low income' thing but they wanted bank statements which I couldn't get... then corona happened.   I've downloaded/uploaded the ZIP file from Resolver convos.   Basically; regarding the footage: my initial message to them, I made myself seem unaware and 'stupid' so they wrote a generic reply telling me that 'the footage is fine and the EA did nothing wrong' so they can't uphold my complaint, then once they sent that; I sent them the CIVEA rulebook and timestamps in the video to show that they were in the wrong and had further lied in their official response (which must be illegal) so when they received the in-depth response, I think they got scared, went away for a couple weeks and tried to get the nice sounding woman to call me up, say sorry and be really nice then offer me a measly £250. She also tried to rush me into agreeing.   
    • No it was about under by a couple grand.    Cheers
    • yes. Did you earn over £12,500  with that employer during the year?
    • No it was 1250L I guess that's the tax allowance limit code?    Cheers
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Nystagmite

Possibly more changes to PIP

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http://www.rnib.org.uk/campaigning-current-campaigns-employment-and-welfare/pip-campaign

 

This only affects the care part. Currently, you receive points if you use an aid. They want to change this. The options are:

 

 

  1. A lump sum for people who meet the daily living threshold on the basis of ‘aids and appliances’. This would be less than the equivalent of the usual daily living rate, it could be discretionary, or restricted (such as paying someone in vouchers). It would not passport people to other benefits and would mean claimants would not be exempt from the benefit cap.
  2. A monthly payment for claimants who meet the daily living threshold solely on the basis of ‘aids and appliances’. As above, this would be below the usual daily living weekly rate, would not act as a passport to any other benefit and would not exempt claimants from the benefit cap.
  3. Preventing claimants from qualifying for the daily living rate at all, if they qualified only on the basis of ‘aids and appliances'.
  4. Redefining ‘aids and appliances’ to exclude items that are a poor indicator of additional cost and need, such as those that are available at ‘low or no cost’ or ‘commonly used by non-disabled people’.
  5. Halving the number of points awarded from two to one for the use of aids and appliances in relation to some or all daily living activities

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anything to reduce benefits pay out!

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Indeed. And what happens to people who use their PIP to pay for care? That has to be paid for somehow.

 

In regards to the first point - I sometimes use my credit card to buy more expensive aids I need to use and then use my DLA to pay off my card. Obviously, I understand not everyone can do this; but I'm fine doing it myself. It gives me the freedom to buy the exact item I need. I don't see why I as a disabled person, (who I should add, is able to for the most part deal with their money) should be told what I can and can't spend my own money on. It works out far more expensive for the taxpayer to do things like that instead of the current system where we given a lump sum every 4 weeks.

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There are a lot of things which seriously concern me with the planned proposals:

- I don't spend all my money on aids as such. PIP / DLA forms don't cover every single life situation. For example, I have severe photophobia (this is a common problem with people who have the eye conditions I have) and find that a bog standard sun hat doesn't help one bit. You can pick these up for about £5. The only hat which helps (and fits!) cost me about £67. I also spend my money on things such as vaseline, coloured paper, nasal strips, (because a side effect of my medication is a blocked nose and it's the only way I can breathe at night) nappy sacks and wet wipes. None of those things are classed as aids or appliances. But they are extra costs I have as a disabled person. They're not that expensive; but they all soon add up.

- they talk about aids and appliances a non-disabled person uses. It's not that simple. I can't just walk into Argos and pick up the first microwave I see. I'm partially sighted and have to have a certain type which I can see the screen properly. Mine cost me about £100. You can pick them up for about £30, I think. My landline phone cost me about £50. My first one (which I got rid of because I couldn't read it properly) cost me £10. Before we had smartphones, I had to get a talking mobile phone and used to use some of my DLA to cover that because the contract was a bit more expensive. It's like that with any technology. I can't just walk into a shop and pick up the first one I see. My laptop for example, cost me £700 2 years ago because of the screen size. They start at around £150-200.

- Where does this leave people who give their money to their family, friends or carers to do things for them? When I lived at home, I gave my parents some of my DLA. That covered things like being taken / being dropped places (because I don't drive)

- some of us with learning disabilities / mental health problems spend our money on human help rather than aids

 

Why, as a disabled person, am I being told what I can and can't spend my money on; but no other benefits claimants are?

 

How are some people going to learn to budget if they're being given vouchers to spend their money on?

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I use some of my DLA/PIP to keep my 'larger' home so I dont have to move into a 1 bedroom place, there by losing the help of my daughter! OK she pays half of the rent and stuff but my HB doesnt cover all of mine. plus even though I didnt qualify for the mobility part I cant walk that far nor carry more than a light shopping bag so use some of the money towards extra trav el costs!

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