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Intercostal nerve transfer & Winged Scapula... Please help


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Hello, I am new to the forums, i'm not sure if this is the right section for this thread, if not, please move it. Thanks.

 

I have been housebound for 8 years, after numerous consultations and physio etc, different reports and studys, opposing opinions, misdiagnosis, bad advice, Psychiatrists trying to convince me its in my head is the latest one. My problem is I have a winged scapula and a severely damaged long thoracic nerve.

 

My local hospital can not offer me surgery for this, i know this can be fixed, i've read many cases and studies of this and its possible for donor nerves to be used and the scapula fixed back to the ribcage.

 

I am in severe pain all the time and nothing will be done, I am on the NHS as i have no money to pay for the operation, i live alone and havent been out for 8 years, im mostly in my bed.

 

Im suicidal sometimes and dont know how much longer i can cope.

 

Can anybody give me advice or help on what to do, im going insane with the pain.

 

Thanks very much. Dee.

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Have the hospital given a reason for not providing the surgery ? Is it controversial perhaps?

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The letter said "There is nothing we can do at Fazakerley Hospital" - The Doctor wont refer me anywhere else. The only thing they can offer is pain relief. But this surgery has been succesfull many times.

 

Im at a dead end.

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The problem is there are treatments that, for a variety of reasons including cost, level of success and even frequency of surgery being carried out that will prevent an operation being offered to NHS patients. It may be that the surgery is not available due to too few surgeons in the region (or even country) with sufficient experience to do it. Finally, it could be that your local PCT don't cover funding for this type of treatment.

 

Unless you can get a reason for them as to why you're not being offered the treatment you want then I don't think you're going to be able to move forward.

 

Feebee_71

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Is the surgery available on the NHS within the UK?

If it isn't available at that Hospital Trust but is available elsewhere then you can ask to be referred to where it is being done : have they said if they consider why you aren't a candidate for surgery or if you could be considered for surgery rather than "we don't do the surgery here" which leaves you unsure of if you could go elsewhere.

 

If you haven't been able to get your specialist to answer go back to your GP and ask them to ask ........

 

You may need to identify what is the obstruction before you can get focused advice on the best way around that particular obstacle.

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