Bookie and DLA... ***WON***

[caro]

Go tell 'em how it is missus.

 

Everything's crossed for you and T.

[GuidoT]

Hope it goes well, you deserve that much.

[Bookworm]

Well, so much for 1/2 hour hearing, I was there for over 2 hours!!!

 

And the result?............. Adjourned. I kid you not.

 

Apparently, the huge amount of case law, testimonies from school, family friends, people who do actually know my son and my own 6 pages statement comprehensively demolishing the DWP's case isn't enough if there isn't a Dr's report... :-|

 

Well, yeah. Apart from his autism, T. is actually very healthy and hasn't been seen by the GP for years. What am I supposed to do, take him there once a year so they can confirm he is still autistic?

 

Anyway, I pointed out that a CAMHS appointment in our area would take between 18 and 24 mths, possibly longer, and that the Ed psych for the LEA wouldn't be interested in following him up since he is in private school, so what to do? Eventually settled on asking the Ed psych from the private school (who has after all known him for nigh on 4 yrs) for a report, meanwhile, I must still get the CAMHS referral in action, and I must keep a diary of his meltdowns to document the when, how, why etc... Of course, the problem is that we actually seldom take him out precisely because of the behaviours, so it seems we are going to have to take him out more often and distress him and us so that we can document his distress... Oh-hum.

 

The goods news is (yes, really!) that they didn't just toss the case out, which is I think what they intended to do in the first place, so here's hoping and waiting some more. Who said it was ever easy, hey?

 

signed: an absolutely shattered Bookie who's going to go for a long nap before she falls asleep on the keyboard.

[babybear39]

Well, so much for 1/2 hour hearing, I was there for over 2 hours!!!

 

And the result?............. Adjourned. I kid you not.

 

Apparently, the huge amount of case law, testimonies from school, family friends, people who do actually know my son and my own 6 pages statement comprehensively demolishing the DWP's case isn't enough if there isn't a Dr's report... :-|

 

Well, yeah. Apart from his autism, T. is actually very healthy and hasn't been seen by the GP for years. What am I supposed to do, take him there once a year so they can confirm he is still autistic?

 

Anyway, I pointed out that a CAMHS appointment in our area would take between 18 and 24 mths, possibly longer, and that the Ed psych for the LEA wouldn't be interested in following him up since he is in private school, so what to do? Eventually settled on asking the Ed psych from the private school (who has after all known him for nigh on 4 yrs) for a report, meanwhile, I must still get the CAMHS referral in action, and I must keep a diary of his meltdowns to document the when, how, why etc... Of course, the problem is that we actually seldom take him out precisely because of the behaviours, so it seems we are going to have to take him out more often and distress him and us so that we can document his distress... Oh-hum.

 

The goods news is (yes, really!) that they didn't just toss the case out, which is I think what they intended to do in the first place, so here's hoping and waiting some more. Who said it was ever easy, hey?

 

signed: an absolutely shattered Bookie who's going to go for a long nap before she falls asleep on the keyboard.

 

You have my utmost and heartfelt sympathy.

 

I cannot get any help re: AS.

 

I get lower mobility and diasability premium for IS for my agoraphobia.

 

NOTHING for AS, severe PTSD, severe IBS, arthritis, OCD, dyspraxia and dyslexia and a million and one other things

[caro]

Well at least you're still in there fighting and they're still listening. A positive result would have been better but this is the the next best thing IMHO.

[skegleg]

Well, so much for 1/2 hour hearing, I was there for over 2 hours!!!

 

And the result?............. Adjourned. I kid you not.

 

Apparently, the huge amount of case law, testimonies from school, family friends, people who do actually know my son and my own 6 pages statement comprehensively demolishing the DWP's case isn't enough if there isn't a Dr's report... :-|

 

Well, yeah. Apart from his autism, T. is actually very healthy and hasn't been seen by the GP for years. What am I supposed to do, take him there once a year so they can confirm he is still autistic?

 

Anyway, I pointed out that a CAMHS appointment in our area would take between 18 and 24 mths, possibly longer, and that the Ed psych for the LEA wouldn't be interested in following him up since he is in private school, so what to do? Eventually settled on asking the Ed psych from the private school (who has after all known him for nigh on 4 yrs) for a report, meanwhile, I must still get the CAMHS referral in action, and I must keep a diary of his meltdowns to document the when, how, why etc... Of course, the problem is that we actually seldom take him out precisely because of the behaviours, so it seems we are going to have to take him out more often and distress him and us so that we can document his distress... Oh-hum.

 

The goods news is (yes, really!) that they didn't just toss the case out, which is I think what they intended to do in the first place, so here's hoping and waiting some more. Who said it was ever easy, hey?

 

signed: an absolutely shattered Bookie who's going to go for a long nap before she falls asleep on the keyboard.

 

oh bookie,

sorry this isnt sorted yet,

what on earth are they playing at ?

it makes me so mad that people have to go through all this and yet there are people out there that think these benefits are just handed to you and all you have to do is apply for these things and you get them

it makes my blood boil

keep on fighting them and keep strong

skeg xx

[babybear39]

Genuine cases tend to have to 'jump through hoops', I know I did for the meagre £18 a week DLA for mobility

[Bookworm]

Time for an update.

 

Got a date for tribunal on December 3rd.

 

I kept a diary as requested and am about to send that in to add to the file. I have received a copy of T's medical records which, as expected, show nothing very useful, and just show that once we had him in a SEN school, they were quite happy to discharge him. Also received copy of the MDT at his school, suitably bland and neutral the way those reports usually are. My job will be to show the tribunal what lies between the cracks, the traffic light system put in place for example to deal with his behaviours, which shows the excesses for what they are and how difficult it is for the school to cope as well.

 

One thing the diary shows is how unpredictable his behaviour is, and how there is no pattern to when he goes in meltdown, and how neither the school nor us can see it coming at times. I hope that will help giving the tribunal a true picture. We will see.

[babybear39]

Good luck and best wishes Bookie *hugs*

[callumsgran]

Jeez, is this still going on? FFS whats wrong with these people?

 

Never mind hun, think of the big fat cheque you will get for backpayment when it's settled eh?

[Bookworm]

Yeah well, I won't count those chicken just yet, CG. They're certainly making me work hard for it, that's for sure, presumably because I don't work hard enough for and with my kid as it is.

[groovycaz]

OMG, this has been going on forever Bookie, I've just received Sams new DLA pack, I hope i dont have the sane carry on as last time but no doubt another fight on my hands is looming...if its not to get him the care he needs in school, its the financial benefit he's entitled to, to help with his care, they try to take it all away, in one way or another:confused: Gc...Good luck with your fight:confused:

[SENDozer]

Yeah well, I won't count those chicken just yet, CG. They're certainly making me work hard for it, that's for sure, presumably because I don't work hard enough for and with my kid as it is.

 

Oh, clearly you're just bored and attempting to fill your otherwise empty days in the west wing of your DLA-funded mansion with a bit of frivolous litigation....

 

I think I'll attempt to relieve the tedium by indulging in a long drive in the ole motability Roller now...

 

All my fingers & toes crossed for you on the 3rd December, Bookworm.

[Bookworm]

I'm in complete and utter shock. I am, quite literally, shell-shocked.

 

 

 

 

 

 

 

 

 

 

 

 

 

 

I won.

[Rooster-UK]

Well done, Bookie.

[SENDozer]

Well done! Awesome news!

[Jan4a]

Yes, well done.

[The GodMother]

bookie when ur over the shock can u tell us more.

[kiptower]

well done Bookie teach them not to take you on,,

[sillygirl1]

Well done.... let us know more....

[caro]

They obviously couldn't work out any other way to get rid of you!

 

Congratulations!

[AA99]

Oh, my goodness, another congratulations! Excellent, going to read your whole thread now:D

[Spamalot]

I am sooooooo pleased for you Bookie.... well done...

[locutus]

Wow must be a big sum of money (if it's keeping bookie quiet :lol:)

[mina2974]

Well done , nice to return to some happy news (((HUGS)))