Help with CAMHS

[bambinaia]

Hi Mina2974

U can opp to home educate (HT).

 

Not sure of the HT sites but if u have a look there is normal some good advice & even template letters to withdraw your child from the school system.

 

 

Some people say it's the best thing that they have ever done, I personally wouldn't know but everything is always worth ago.

 

On the other hand have you contacted National Autistic, OAASIS,ACE (Advisory Centre for Education ), IPSEA etc.

 

They can normal help in some way

 

 

Bambinaia

[Chayton]

I have a 13 yr old son with Asperger and a 15 yr old daughter displaying quite obvious symptoms of the same thing (but without the benefit of a diagnosis since CAMHS seems unable to cope without a report from a school - and since my children are home educated this is not likely to happen).

 

I removed my children from school several years ago because of physical and mental abuse, about which the school did nothing despite numerous meetings etc.

 

My children have calmed down considerably since I removed them from the abusive environment I was forcing them into every day (I literally had to drag my daughter into school at times). Theyre like different people now - calm, relaxed, well mannered and polite, softly spoken and well-balanced. I just wish I'd taken them out of school earlier to save both them and myself the suffering we all went through while they were attending school.

 

The procedure is very simple - simply write a letter to the school advising that you are de-registering them. You do not need to explain why, or go into any particular detail. If you have a child who is registered SEN then you will have to write a further letter to the LEA SEN Dept to say the same thing. The LEA will then monitor the education your children are receiving at home to ensure that it is satisfactory.

 

There are many home education websites to be found; my personal favourite is Education Otherwise - Home Education Support Charity

 

Getting them back into school if you so wish is just as simple - just contact the LEA who will send you forms to complete, in exactly the same way as you registered them when they first went to school.

[mina2974]

Wow just read through all my posts back again and sadly no better off .

 

Miss Boring was assaulted at school on the 16th of this month , she is still not statement as R became ill again and I could not pursue the tribunal process , county EP and Labbs got the same test results as private dx's but state minimum support requires, county salt requested visual aids for communication , all advice was ignored , the school withdrew all support in year six,

Miss B was assaulted at lunch time, was not seen by a first aider and was left to sit all afternoon with significant bruising to her body , When I complained the school sent home an incident report naming another child who was also assaulted and the boy who attacked her , the next day they denied this and two EWO's repeatedly questioned me in front of my 9 year old and 5 year old, the questioning was aggressive enough to make my 9 year old cry!

The school now deny any assault happened at school, they are trying to pin the blame on my 10 year old stepson who has been placed with us by social services after his step dad assaulted him.

I put in a formal complaint , the HT responded by writing a letter saying that he will not investigate as the issue has been resolved to HT satisfaction , a third of his letter was unrequested info on home schooling , school made a SS referral against us re step son having behavioral issues ( this boy has a five year documented history of behavior issues and was on sa+ at previous school )

Miss B is off school with daily nose bleeds through anxiety , nightmares that the HT is going to kill her etc , she has now not slept for 4 days straight

Am tired worn out and just about ready to give up

R is now on meds , his experiences have led to him now being dx with anxiety disorder and depressive disorder , he is coping but only just .

[bambinaia]

Hi Mina2974,

What you are describing is sadly too familiar to parents with child of dx of ASD or behavioural problems.

 

One very important thing you must learn to do & start to do it now is to be the parent from hell!!! Noone else is going to fight for you & the bottom line is money because everything your child including the stepson cost.

 

My encounter with SS was a nightmare if you have any involvement with this oh not so helpful bunch of Muppet's make sure you always have a wittiness plus document everything eg dates times person name phone calls & conversations because they will & they will twist what has been said & lie. After all they will say it's your ability to parent & what they will try & do is send you on some sort of parenting programme. That way they will say they have provided you with support.

 

With regards to the statement have you written request that your daughter is assessed under the SEN procedure?

 

Hang in there you are not alone believe me.

[mina2974]

Hi

 

I put a new request in for statutory assessment in this week, Miss B is still not in school, We have now reached the point where no one in the LA will return our phone calls, I can only assume that we have been blacklisted in some way *sigh

 

Have been very very careful with SW but although they are ineffective they can't really call us bad parents as they placed an extra child with us, I refuse to have my child forced out of education , Just not sure how to force the LA to communicate with us grr

[bambinaia]

Hi

If you have put in a written request for an assessment the LA must reply within a given time frame. If they fell to respond you need to go down the complaints root or phone NAS they can be quite helpful.

 

Everything you send to the LA make sure it is sent recorded or special delivery so you have proof that way they (LA) can say they never had a request. You must cover your back all the way. Try not to request too much in a verbal manner because what proof do you have that you've asked!!!

 

The golden rule is to document. Sorry I keep going on but our experience was one I would never wish on any parent.

 

The part about parenting is not about good or bad parenting what will be said is your parenting skills are not quite adequate & therefore a parenting course might be recommended eg Webster Stratton. This is total useless for kids & parents alike who have a DX of ASD.

 

I hope I'm not barking up the tree, this is my opinion gained through the experience I've had to deal with.

[tiglet]

Again, let us know what their response to Statutory Assessment is - it will probably be "no" (default position) but I will happily help you prepare your NOA.

[mina2974]

Hi all

 

Disappeared again sorry its so hard with the kids atm , situation to date is they said yet to SA, we should hear by the 20th at the latest if they are going to statement, I think that they said yes to shut me up, but got a bit more than they bargained for as I went to some of the biggest names i could afford for independent assessments. Am hoping that I will not need to go sendist but just in case Have a whole file of illegal practice that I can use .

R tired to kill him self again, he's crashing and sinking into a depressive state thats hard to cope with, funnily enough the school see nothing grr, have on record the senco admitting that she keeps kids off SA+ , so in goes another request for assessment , please keep us in your thoughts this week , I really need a yes for statement for Miss b , I have a feeling I will be pursuing SA for one and sendist for the other though .

 

For anyone new to this, get your child on sa+ , I am speaking to too many parents who's kids are being kept off this as it makes it hard to get statutory assessment approved !

[mina2974]

Had a rather shabby attemt at a statment for Miss b , sent it back with a few ( ok a lot ) of suggested amendments , I do think we will be going to tribuanl with this, Have also had SA agreed for R , we have camhs onside to push for sen school, he's now out of school due to a total nervous breakdown involving an attempt to kill himslef , 2 stupid ss and 3 police officers restraining him

Parent bashing is still going on but no longer care, kick me and i Kick back harder , Have decided to move LA's at the end of this year, hear witneys up and coming and im sure DC will take good care of me mwhahahha

[bambinaia]

Hi Mina2974

Nice to see u're hanging in!!!

For us that have already been through this process we know how it goes

My daughter is nearly 18 & it started when she was 7 1/2. Believe me the problems don't ever go away they just change & you become (or try) wiser. Me personally I have become quite good at social care law & educational law

 

It will be nice if that day ever comes that ASD is fully acknowledged & the difficulties that parents face on a day in day out bases are recognized.

 

Hang in there x

[mina2974]

Round one with Education won, Miss B has a full time specialist placement , shouted to everyone including the local MP who was so rude he was sent a slap via e-mail

 

They have until July the 27th to respond to R's am hoping that they will see sense with him as well, wish me luck

[Bookworm]

Well done you!!!

 

Keep kicking ass, it obviously works!!! ;-)

[mina2974]

Thank you Bookie , think I have got the hang of this fighting lark now, Believe nothing they say, quote case law to back up every point you make and generally make sure they know you are the pain in the bum that will keep shouting until you have got what you need for your kids , record everything they say and they hang themselves, We have really had some of the most incredible things put in writing to us

 

If only the Asd was as easy to manage, since I last posted about R he's now got 3 new dx's , anxiety disorder, depression and Pica , I had read somewhere that the traits can become exaggerated during puberty but no one said it would be an explosion lol

Hope things are going well for you

[Bookworm]

Can't complain right now, T is doing really well, puberty so far i$ acne and no change otherwi$e, finger$ cro$$ed.

[soniaandsam]

hi mina

 

i read your posts with avid interest, i did send you a pm. i foun this thread as im looking at how to get the dla for my son now 15 who has nephrotic syndrome (minimal change) and has the exact same behaviours as your son due to the high dose prednisolone medication prescribed. does this sound possible to you? it does cause mania, depression and all sorts of horrors.

 

how did you manage to get dla i was refused twice its so disheartening when you need all your energy and have so much on your hands what with frothy urine, water retention etc

 

just a question does your son exhibit worse behaviours when he is hungry? mine was just awful and really self harming

 

i got him to see the sen team and be under camhs by taking him to a and e and my son told them he was going to kill himself . they took him seriously.

 

anyhoo we managed to get him off the steroids (severe emotional and behavioural side effects) and on to tacrolimus which has been great and i have my son back but now he is just relapsing so will be back on the pred...oh my god there goes my life and i have a newborn too! hell on earth!!

 

sonia

[mina2974]

HI

 

I think I did send you a pm but will reply on thread in case anyone else is in a similar situation, I can only pop onto the forum every now and then due to having my son at home still,

 

In hindsight R had AS well before he started showing signs of the kidney disorder , his pead feels that he was showing signs of it from about the age of 7 , but his high tolerance for pain and discomfort masked it for years, he used to wake up every morning with huge bags under his eyes but as he did not sleep more than two hours a night we thought it was due to that, My son is so pedantic and professor like that I am 100% sure that his symptoms were a direct result of the ASD not the steroids , they did make him a lot worse and I was glad to take him off them, but with his ADOS scores were very high according to camhs, the dx him in one meeting as it was so obvious that he is on the spectrum,

 

Just to update he now has a statement and will be going to specialist school as soon as we have finished arguing with county over his placement

Round 2 won !!!

[Bookworm]

Mina, that's wonderful news!!!

 

You know, you should re-read your thread from start to finish and see how you have changed, from a completely bewildered and hapless mum to this woman who has managed to conquer all for the sake of her kids. I am so proud of you!

[tiglet]

Yeah!!!! Well done girlie - it's a great feeling when you get through all of this, isn't it?

 

Keep arguing over placement - you'll get there xxx