Showing results for tags 'haemochromatosis'.
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Great. I was told yesterday that a sibling of mine, about the same age as me, has been diagnosed with (homozygous) haemochromatosis. Never heard of it. Unlikely to worry her much, alas: such highly diminished cognition and life expectancy (extremely) advanced frontotemporal dementia now leaves her, put all too many other conditions, except pain\discomfort, largely into the shade. But her GP (not mine) was busy sending messages to my other sibling and me to 'get tested' as soon as possible because, I learn over the past few hours, it is an hereditary disorder and, high risks and blah-de-blah, 'genetic counselling.' (Bit too late for that.) I've looked at the main sites the standard searches throw up, of course – but has anyone here got this condition, or know someone who has? And are these 'tests' just the same ol' blood tests – wait 6 months to get a GP appointment, if ever – another 6 weeks to see the practice nurse – and do it all twice after the realise they didn't request the right thing in the first place? Any practical info would be much appreciated. I understand the usual treatment is leeches.
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