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  1. My son is 19 now, he's been in receipt of DLA for about 5 years on the lower levels. His DLA is given in regards to behavioural, self care and communication issues. He did have a job for a while, but as suspected was unable to hold it. This job was handed to him on a plate by my cousin, so he clearly didn't interview for it etc. In the 6 months he was their he simply couldn't understand the 'banter' so took offence at it, he couldn't get up on time without me screaming at him, he didn't bother washing or wearing clean clothes. In the end my poor cousin had to fire him because no one would work with him. I made him sign on at the Job Centre because I simply can't afford to keep him, and he was awarded the £90 a week given to those on DLA. Now it turns out he's off benefits because they kept giving him sheets of paper and telling him to 'call these people for work experience'. At no point have they realised he literally cannot pick up a phone and do that. They won't discuss it with me because he's an adult, but he couldn't even list all his problems to be honest. I don't really know where to go from here.
  2. Hello all, this is my first time posting so please be gentle. The long and short of it is my daughter has been extremely hard work from birth and only when she reached 9 did we get some answers and diagnosis or her problems. These include hypermobility, attention deficit disorder, sensory processing disorder, dyspraxia and sleep disorders. Her primary school were very restrictive and actively prevented us gaining outside help for her but we applied for dla (my dates are very rough so please excuse me!) around 2011 when she was around 9/10 and were refused, we eventually went to appeal in around 2012 (yes it really took that long!) the appeal was informal and not too stressful and we were awarded middle rate care which was awarded for 2 years but about 20 months of that was backdated so it ran out within 4 months and we reapplied in 2014 and again were refused, again we went to appeal which took until May this year (her now being 13)... the appeal was highly distressing so say the least, it took place in the magistrates court 2/3 of the panel were very aggressive in their questioning .. constantly almost trying to catch me out ... I felt like i was on trial for murder rather than just trying to get what my daughter is entitled too! We were awarded lower rate care backdated and in place until feb 2016 (2 years again with only a few months left until reclaiming), but were told there was more recent information that they couldn't take into consideration but we should submit that information to a super cession for care. So we did this and last week received a no for care and the reclaim pack for her mobility/dla claim ........ I am now in a predicament .... they already said no for care and the mobility is up for renewal. I categorically know they will not award it and I know for a fact I will need to return to tribunal which I honestly do not think I can cope with, the stress of the situation has put me on higher dose antidepressants for anxiety and stress! Yet I feel an injustice that I am having to go through all this? The money massively helps replace items such as clothing my child eats/bedding she ruins and carpets and such like, it also allows her to partake in activities during the holidays especially for her, so it is important. I even had input from somebody from the disablement action group with the tribunals but they appear to be very busy and I cant think about doing through all this again, does anyone have any advice? Thank you x
  3. Hi all, My son is disabled and gets higher rate care and mobility DLA. It is in my husband's name - i.e. all correspondence goes to him. He was claiming carers allowance but we have recently separated. Carers allowance has been stopped. Can I claim carer's allowance for my son even though the DLA is claimed by my husband? The DLA money goes into my account to use as I see fit for our son.
  4. Do you want to know when your area is changing from DLA to PiPs? If so please read the attachment as you can see when and what areas are up next for the changes. I have also included the Welsh version as well for reference. Last updated on the 05/04/2015 first issued 05/04/2013 Timetable for PIP replacing DLA Updated: April 2015 Timetable by date and location. This is done by using the first 2 letters from your postcode so using the attachment you can see when your area is having the change from DLA to PIP's for example the following areas are due for the change in May of this year From May 2015 From 25 May, areas further extend to include postcodes beginning: BS; CB; CM; CO; DA; GL; MK; PA; RM; SN; SP and SS.
  5. Hi, I'm a little confused about the "disability premium" which I asked the council about. I've seen it mentioned before and they seem to keep fobbing it off. The local Housing Allowance in the area is £450 per month (£103 / week), and they're paying £110 towards my rent. They seem to think that it's worked in with my Housing Benefits, but looking at the breakdown I don't see any mention of it. In the HB breakdown, the worked it out as: £90.08 used as my income (after DLA being disregarded and a bit of my Tax Credits disregarded too). They said in their letter (Entitlements Letter) that, the law says that I need to live on "£165.35" per week and as they word it: Income used in this calculation: 90.08 Less how much the law says you need to live on: £165.35 Where exactly do I find the "exact" value out, as they don't seem to be able to point me in the direction to where I can find it. Scouting around on the web, I notice that pretty much most councils have Disability Premium listed on their pages, but not mine... Any idea as to how I should approach this? Cheers, A
  6. I hope this is the right place to find answers to our questions. My partner is on DLA and I am on working tax credits (self employed working 36 hours a week). My partners mother died November 2014 and left everything to my partner and his brother. It is mainly the house (with alot of equity taken off). My partner is the executor and when the house is sold the eventual proceeds will be split between him and his brother. Sounds great, but, we are in the middle of the long process of the changes with the benefits regarding my partners ESA and DLA. And I have just received the form to renew my working tax credits. What are we supposed to declare, when are we supposed to declare it............. we are so stuck for money at the moment as my partners ESA stopped last June and he has, only last week, received an appointment for an assessment. We have been surviving on about £200 a week (most of that is DLA for my partner), with £250 a month mortgage to pay. I am so frightened of doing the wrong thing and messing up all the paperwork, it is such a minefield with every question ending 'you may be done for fraud' or 'owe money'. I would appreciate any advice please or any suggestions of who we can go to for help with the forms etc. T
  7. Hi all! I hope someone can advise me here, I'm due to go to appeal for my daughters DLA and it is likely we will win (again!). My problem is i owe a large amount of money to the DWP and to the housing due to a massive over payment. I strongly suspect the backdated carers allowance, DLA and housing benefit will be taken off my debt so i wont receive the back pay? Am i correct? The Housing underpaid us recently by over £500 and that got deducted from our debt. I will get to keep the backdated tax credits i assume but i was looking forward to buying some specialist ( and very expensive!) equipment for my daughter to improve things Thank you for your help!
  8. I was recently checking SCOOP and saw this this story which can be read here in full http://www.plymouthherald.co.uk/Hundreds-express-anger-Plymouth-council-s/story-25831599-detail/story.html How much more will claimant's suffer especially those on DLA (Disability Living Allowance) and the care they may receive from their Council Scoop is here http://www.scoop.it/t/lacef-news How many more Councils will follow suit? Your thoughts please?
  9. Hi all just thought this would make a topic for discussion please follow the link read then comment http://www.independent.co.uk/news/uk/politics/charities-very-worried-after-leak-suggests-tories-plan-to-tax-disabled-benefits-if-reelected-10142070.html?cmpid=facebook-post or http://www.newsfixboard.com/t8724-charities-very-worried-after-leak-suggests-tories-plan-to-tax-disabled-benefits-if-re-elected
  10. Hello, I hope someone can put us right on this please? Mum is now in care home permanently. We know about Attendance Allowance for dad as the local authority (welfare rights) have taken over making an application for him. What we are confused about is mum's DLA. She gets both components at the higher rate and has done since the early 90's. She always exchanges the mobility element for a Motability car. She obtained a new one some 5 months ago. The car is our dad's lifeline (mum can't drive as she has never passed a driving test) due to the complete lack of local shops/bank/post office and public transport etc. He has to drive 9 miles to the nearest town if he wants anything plus he has to drive 17 miles in the other direction when he wants to visit mum which is every day for obvious reasons. He also uses the car to take mum out when she is up to it. There still is the fact that dad may have to leave the family home (long story as posted in another thread) at sometime in the future if the council get their way. If that happens he wants to stay local which will mean a huge rent bill (he doesn't have much in the way of savings). If he can't afford the rent, then he will have to move out of the area which will add more distance to his travels. Now that mum is no longer at home what happens to her DLA and especially for dad, what happens to the car they have? Does he have to go out and buy one privately? If so, he would want the equivalent vehicle (not a small city car) which will set him back just over £25,000. He wouldn't be interested in a second hand vehicle as in his words ' you don't know how it has been looked after'. It would be for the best that he can keep the Motability one as it doesn't mean having to use any of his savings.
  11. My elderly mother moved into a care home around 7 months ago. Before she moved into the care home she was receiving high rate mobility DLA, because the care home was local authority funded her DLA entitlement was stopped. I received a letter from the DWP today and one of the paragraphs stated that there is a possibility of having her DLA re-instated, I have attached a scan of this paragraph. Has there been a recent change for this DLA entitlement for persons in residential homes?
  12. Hi Just had to change bank accounts and was rather suprised that I had to notify both departments of the change of account details I expected to only make one call to change my details has any one else had this
  13. Hi. I've just gone from DLA to the new PIP & have lost £150.00 per month it seems. Just got the pip 'final' deciders today. Currently (till start of feb) on middle rate carers & lower rate disability I am/was getting about £369.00 per month. Now in the Pip letter they tell me I don't get the 'daily living component' as I only had 6 points (min 8 required). They are saying I will receive £56.75 per week for the 'enhanced mobility' component. So under the new PIP i'll receive £225.00 per month instead of £369.00? My question is this:- Will I receive a separate letter about the carers allowance? If I don't have a carer, will that money go to me like it did with the DLA's? I am very worried at the moment as I seem to be losing out on what amounts to almost £40 per week from this new pip benefit compared to the DLA, and this while I am actually worse off medically than i was when i made my original claim! I am an MS patient, I cannot walk far without assistance & I use a wheelchair if someone takes me out for the day (family usually). There have been mental health issues (I rarely go out at all) though seems pointless mentioning those because it seems in no part does my pip claim reflect to any of my mental health problems only in the mobility side. If this is all I am to receive now can anybody tell me the steps to appealing or post a link to same. Any help with this appreciated as at the moment I just feel like i've been robbed.
  14. My husband received a letter inviting him for interview under caution for benefit fraud. The only benefit he gets are high rate DLA and middle rate care. He was in a road accident in 2007 in which his vertibrae collapsed, it was too riaky too operate (90% chance of being paralised) so neuro surgeon treated him with a massive dose of steroids to release it from his spine, thus solved the main problem but left him with lasting nerve damage in his hands and feet, and severe pain constantly. Then in about 2011 he started getting pain in his left groin doctor told him it was a pulled muscle, the pain worsened and then he started falling over for no reason really bad balance issues, people thought he was drunk! So he had an X-ray and was referred to a specialist who diagnosed avascular narcosis which is crumbling of the bones, which led to a hip replacement(he was only 47 yrs old), and was told the other hip would need doing in the next few years too. Then he started to get pain in his left shoulder, turns out its in all his joints so he had shoulder replacement early 2013. He was already claiming DLA at this point it was his only income, he went back to work at the end of 2013 informed DLA who made him fill in a new form, which he did and it came back with the same award no change. He is currently waiting for results on a test to see if the new shoulder is infected and has got too come out for three months to treat the infection! We both work full time and we're not aware that he couldn't claim DLA as it is not means tested so can't understand why he is being investigated, can anyone give us any advice his IUC is next week.
  15. I am right in thinking DLA is not means tested? Also when I retire will I still get it, or does it commute to Attendance Allowance?
  16. Hello All I am posting on behalf of my parents , my father in particular, he is 79 and gets DLA mobility component only, he has done since he was in his late 40s, he has menieres disease, I would like to know as my parents are reluctant to make any changes or new claims. they do not get any other benefits at all, and as my father has got older his needs have changed and he needs more care, they are frightened he will lose his DLA even though he has been told he has been awarded it indefinitely. My mum also has a heart condition and has bad hips, I would be grateful if anyone could give me some advice on what they could claim, my dad has a small pension and gets state pension, my mum has 2 small pensions and she gets the state pension, they get £20 off a year from their community charge , because my father had a downstairs toilet put in a number of years ago. thank you for your help.
  17. Well going off my experience there is no such thing. I was previously getting Lower Care Rate. I posted my renewal claim on */oct and got a reply through the letter box 9 days later. No doctors notes sent or surgeons appointments etc. I have now got Lower Care Rate awarded indefiinatey. They just based the decision on the info on the form I in had filled in, yet previously they contacted my GP and Surgeon for info. Just goes to show what an absolute joke this system is !!, when other people much worse off than me get turned down.
  18. I was granted DLA in 1997 for life (I still have the letter) but recently received a 40 page booklet to complete because the award was "under review" - even though it was awarded for life and has been increased twice as I became worse. Yesterday I received a phone call from DWP telling me that the DLA had been stopped. The lady couldn't tell me why, as she was not the person responsible for the file, but that they needed further information and that a letter was in the post. Nothing has arrived and I am at my wits end as to what to do. We cannot survive without my money and there doesn't seem to be any organisation that can help people like me. I do have depression and this big black hole is opening up again, so much so that I just feel like going down to the railway line when it gets dark.
  19. Hi guys I need some help, i applied for esa on 8th April as i am going through bad anxiety and PTSD. After few days they sent my statement back and ask for doctor's note which i sent on 18th April. On 19th i got sms from Jobcentre that they have all information and they will contact me with the decision. I also received the letter from Jobcentre saying that i am pleased to you that we can pay esa form 8th April you will get £84 a week etc. I rang Jobcentre on 25th April and i was surprised when they said they have not received my sick note and i need to ring on Monday to find out. I rang today and got another surprise when they said you need to send the ESA50 form back then we can release the payment. Can anybody tell me if this is true i am totally confused and upset as i cant fill this ESA50 as its too difficult. I made an appointment with local cab but the date is too far and i dont know what to do. Thanks
  20. Hi I am trying to reassure a friend who is convinced that if he tells the DWP of a change in bank account they will reassess his DLA claim I have said that he will not be reassessed untill 2015 at the earliest (re DLA website ) unless his care / mobility needs change Unfortunatley you know what chinese whispers are like I am now beginning to question the advice given has anyone heard about the above Thanks
  21. Hi all. I have a question to put to you all if I may. I am on ESA and receive PIP as well plus housing benefit. My disabled daughter gets DLA which we put in her bank account as it's her money. I think you can only have £6000 savings and a child £3000, she nearly has that now so I do not know what I can do with her money we do not want to spend it willy nilly on rubbish so what can we do legally? Any help will be gratefully received.
  22. Hi. I am an MS patient (diagnosed 2012). Firstly I just want to extend a big thank you to CAG & it's members, you guys rock & do a fantastic Job in helping people get through the bureaucratic pit falls in all walks of life. You have helped me and countless others in the past so guys/gals thank you so much! Ok, now to my problem... I have the form from the PIP people, it's expected back to them by the 21st of August or apparently I lose my right to claim! I just have a couple of questions regarding the form for anyone who's already been through the process and applied. 1) Is the form for DLA>PIP people different from those claiming PIP for the first time? 2) Regarding Savings, I have some savings but what do I put about them on the form? I have always felt them asking about this as an intrusion and in the past never had any savings but now that I do how much will it affect my claim letting them know what I have? (I am quite concerned about this one). lastly 3) Is it ok for my mum to fill out the form for me if I am there to give the answers? I am ok at typing on a PC keyboard if I concentrate but writing is a lot more difficult for me. I don't know that many other people I can ask to help fill it out and I am unsure as to if relations are allowed to help with this. If anyone can help clarify these three things I would be very grateful. Also if anyone has done the DLA>PIP and has any other advice regarding the form/application also want to extend thanks to you if you can help.
  23. could someone tell me how the "tribunal bundle "papers are handled. Also, what would have happened when i sent my submission...who copies it tribunal clerk at Sutton or tribunal clerk at the local court? I sent ( in triplicate - one for each member of the tribunal) It would appear that these were copied in their entirety and included in each member of the tribunals appeal bundles in preparation for both previous Tribunal dates. That is the only way i can possibly see that could have the number of papers that they state in the decision notice . This may explain the underlying feeling of frustration at the volume of papers that i picked up on- but the panel didn't appear to notice that they had triplicate information .. and it only crossed my mind that this may have happened when i got the decision notice stating the number of pages that differed from mine . I rang straight after the adjourned hearing and requested that they therefore ensured that the papers provided to the next Tribunal only include one copy of all the relevant documents. Stating that in order for the next Tribunal to give my case due consideration I do not want the panel to be considering an appeal bundle which has triplicate papers within it. there were also two highly relevant pages pages from my original DLA application missing from the bundle that Tribunal had in front of them .. which was then photocopied at the hearing and I have requested that these be inserted into the tribunal bundle in the appropriate place . Is there anything further i should consider doing to ensure that the the next tribunal gets papers that are easy to follow and allow me to have a fair hearing? In addition , my hearing was adjourned for more evidence from the GP. when the GP has created these and sent them back I assume they will be added to the "tribunal bundle" and i will receive a copy. will these medical notes be numbered in continuation or will the whole bundle be renumbered and will i get another copy of the whole thing? I ask because I will need to keep track of the cross referencing that i have made my hearing was adjourned for more evidence from the GP. when the GP has created these and sent them back I assume they will be added to the "tribunal bundle" and i will receive a copy. will these medical notes be numbered in continuation or will the whole bundle be renumbered and will i get another copy of the whole thing? I ask because I will need to keep track of the cross referencing that i have made. many thanks
  24. Hi there, after a home visit medical I was awarded high mobility and NO care. I cannot understand how they have decided that I have not been awarded care component. I am thinking i should appeal, but i have several questions. the letter says that i can write or phone within 1 month of date of letter. (I have about 10 days left) and that if since receiving this letter we have sent you a written statement of reasons for our decision you have at least an extra 14 days to make your appeal. How do you get a written statement of reasons? .. In the award letter it does say having considered all the information i have decided the following ( and incorrectly lists not needing help to prepare a meal, lists day attention areas not needed. and not needing night attention more than once or for 20 mins or more a night).... is this the statement of reasons? How do you get to see what was written in the EMP report as i cannot see how the difficulties i stated ( i recorded the medical for my own memory) would result in a NO care award. when I appealed my ESA , i didnt request a review and went straight to asking for an appeal ( as the review is done automatically)... and I waited for the tribunal pack before preparing a submission is the same for DLA? I will probably have some more questions , but right now i need to know how to proceed . many thanks in advance
  25. At the end of January I put in a claim for DLA (still getting that here in Northern Ireland). I mentioned that to my GP. She said that in my case it would be unlikely I would get it but she would fill in her part for me. About 4 weeks ago my support worker rang DLA to find out what the hold up was, only to be told that My GP had not sent the information they required. About 2 weeks ago I had an appointment with my GP and mentioned this. She said she would fax the details through to DLA. I rang DLA yesterday and they still had received nothing. And when I rang the surgery this afternoon, I asked the receptionist if she could check to see if anything had been done in relation to this. She said and said she would remind my GP. Has anyone else had this problem or is this a common thing that it may be because the GP is busy.
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