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mikv

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Posts posted by mikv


  1. Then I don't honestly know. I can't find any version on the net that is dated 2013.

     

    I can't quite understand this, why would the government redesign the DLA1 in 2013 when PIP started in April 2013?

     

    Are you sure that it says DLA1 and that it isn't the shortened version for renewals?

     

    Positive it says DLA1 bottom left front page.

     

    no idea , but it is definitely no the same form as before.

     

    mike


  2. Hi Mike I am getting confused .A few years ago I was given a life time award, I have since been told I would be assessed for PIP from 2015.

     

    Were you given an award for a set period of time and you are being reassessed.

     

    I was given award for set period previously yes , so I suppose this is a reassessment , even though there is no note to say otherwise.

     

    do you think they sent me a new application by mistake ?

     

    On the old form they had mental, cognitive functions all in one category as they did physical - which going out was part of , I do not get at all how that has been reduced to something now only affiliated with walking, and those who can walk while ignoring everything else.

     

    mike


  3. From what I can see the latest version of the DLA 1 has been around since October 2011!!!

     

    then what did I get ?

     

    as it has DLA 1 jan 2013 on it but is nothing like the one from the last few years ( possibly since 11 ) cant remember ,

     

    Its nearly all care focused questions with only 10 questions asking about physical problems related to walking ( q 25 - 35 ) when getting around.

     

    mike


  4. No , not from what I can see , its just a revised version of last years dla form.

     

    I shouldn't have to deal with PIP till 2015.

     

    There are so many questions missed out however , I was thinking of just printing them out ( my photocopied responses ) from the form I filled out last year.

     

    Do you think that would be a problem ?

     

    mike


  5. I am trying to complete mine but am shocked to see nearly all the questions are centered around people who can walk, so for example there are no choices for wheelchair users when getting around , just those who can walk.

     

    It doesn't even ask if you can stand , or reach etc any more either , I mean I might as well write them a whole dossier as there is nothing really there at all geared towards asking questions about serious disability.

     

    mike


  6. Yes,it's called Change of circumstances !

     

    If your mobility get worse/better,you needs more help at home or less you need to declare it to DLA office in Blackpool https://www.gov.uk/disability-benefits-helpline

     

    DLA is not affect by savings/income....

     

    Well if they already knew I was housebound and I still am there is nothing to declare , and even if I did improve on what time scale is that measured ? i.e. what if i became re injured again in a week or even a day ?

    ( As is quite possible with my issues.)

     

    mike


  7. I'm sure the 23,500 figure is related to paying for care from social services.

     

    That is something else too , I have unoffical carer of sorts in my folks who empty the bin , and do some cleaning once a week , cut my toe nails ( as i cant bend ), its not over 35 hrs ( more 4 -5 ) as required but its still invaluable as I like my privacy and they can pick up some things for me otherwise not unavailable i.e. treats like Chinese .

     

    I do pay them for this , in addition to food they deliver for me , but its usually not that much ( the care ) as they never tend to ask any way.

     

    Is there any way I can officially pay them for this through the DWP and what classifies as care if you have someone helping out with payments / finance and other things ?

     

    mike


  8. Well I've been housebound and told them about it ( DWP ) and they awarded me what they saw fit which mounts to just over £2640 a year for mobility / transport.

     

    But obviously if I am housebound thats not going to be used , unless I improve and get out , so how exactly do you do decide when to award that someone or not if their in such precarious position to start with , and their health situation can change from day to day ?

     

    I dont see why someone should be penalised for something that was awarded to them if its was someone else's decision like the DWP, or why they should be penalised for not being able to use because of situations outwith their control like their health . ( its not like that person is choosing to remain housebound after all )

     

    Is there a rule that states someone should have the mobility component stopped if they have been housebound for xxx years ?

     

    mike


  9. I'm currently filling out my housing benefit and have under £23,500 ( which I read somewhere was the cut off ) but reasonably close because I've not been out spending cash on things due to being housebound.

     

    3000 of that is in Isa and the rest - or 15,000 -is in my current / saving accounts at the same bank.

     

    Will this be penalised in an way. if I'm between say 18,000 and 23.5000 , and if so what are my options ?

     

    thanks again ,

     

    mike


  10. :mikv:

     

    First off, I hope that one way or another you persuade Atos to do a home visit.

     

    If you can't, as you probably know, your choices are try to attend an assessment or risk a 'failure to attend'. If you choose the latter the decision maker has to consider 'the claimant's state of health at the relevant time' and 'the nature of any disability the claimant has'.

     

    Do you mean Atos rather than a jobcentre, or is the situation confused cos your default Atos centre (as determined by your postcode) is in the same building as a jobcentre? Should you decide that trying to get to an assessment is the least of all the evils, consider;

     

    Insistence on the first appointment of a session, which isn't usually a problem.

     

    Once you get the appointment letter tell the assessment centre (don't ask) via phone or in writing, that cos of pain you'll need to lie down during the assessment.

     

    Soon as you're shown into the assessment room get on the couch and stay put. Atos assessors don't like it, but they've no choice about lumping it.

     

    Now I realise that what I've written is easier said than done (especially if you've communication problems) but if you can find a chaperone to intercede and help you onto the couch, assertiveness and persistence can go a long way with Atos. I've known two claimants answer questions from the couch, and it's a lot easier than defending a 'failure to attend' for which there's no assessment payments pending a tribunal.

     

    Lastly you may be interested in some comments from Doctor Laura Crawford, Clinical Director for the Medical Services Contract with Work n Pensions. One of the above mentioned claimants waved her answer to question 87 at an Atos receptionist. :-)

     

    http://www.publications.parliament.uk/pa/cm201012/cmselect/cmworpen/1015/11051802.htm

     

    Good luck, Margaret.

     

    Dr Crawford: I have experienced instances myself with somebody who was more comfortable lying down, and in that case it would be a matter of talking to the receptionist. Not all examination or assessment rooms would be in use all day, so we would try to find somewhere for them to lie down more comfortably. If someone is very uncomfortable, that is where the receptionist is very important in trying to have them seen slightly more quickly than someone who is more comfortable waiting.

     

    So what happens if they cant find somewhere to lie ?

     

    I cant shout at them or talk that loud so even if I lie down on the floor their unlikely to hear me .

     

    thanks,

     

    mike


  11. :mikv:

     

    Right, there's several issues going on here, but for the moment I'm talking about your referral to Atos for a work capability assessment. Who's fault is it? On behalf of successive governments, Work n Pensions have raised the bar for disability benefits several times since October 08, hence their request for a work capability assessment.

     

    My personal opinion is that all face to face assessments should be audio recorded unless the claimant wants to opt out. Whether or not you want an audio record, cos Atos are short of audio recorders a request for one may buy you some time to see the specialist in London or compile some more evidence for a home visit.

     

    Did you describe your problems with making yourself understood on the ESA50? If you manage to get to an assessment, hand a statement about your speech problems to the assessor, with another copy to Jobcentreplus via recorded delivery. It'll come in handy for an appeal if s/he doesn't allow time for your answers. To lessen the sitting time, ask Atos for a first appointment of the session and warn them that you'll need to lie on the couch for the duration.

     

    So :sorry: that Government are asking the impossible from lots of very disabled, sick, and vulnerable claimants. Praps the organisation below, or a similar one, can offer you some support.

     

    http://www.siaa.org.uk/component/option,com_frontpage/Itemid,1/

     

    Sincerely, Margaret.

     

    Thats the thing Margaret, the job center cant even guarantee me a couch or someone to lie , I was hoping to record them here - all bet it secretly - and might well do any way to make sure their version isn't " edited " if I decide to , or have to appeal.

     

    thanks again , and to everyone else whose responded.

     

    mike


  12. And no. Atos aren't going to wait until December for your convenience, although their appalling backlog of assessments may help you out. Especially if you ask for an audio recorded assessment, which is a good idea anyway. :-)
    The only EDS specialist in Scotland has 2 yr waiting list , so what happens then ?

     

    Are they going to blame me for not going before when the DWP have been perfectly happy with my evidence for over 13 yrs , and if not whose fault is that ?

     

    Also that referral I was approved for 10 yrs ago to see the top EDS specalist was never made known to me at the time until I requested my complete records in late 09 , so its not like I was even aware I could of gone any way because my GP at the time never told me - nor did any one else.

     

    Not just the travel its my inability to talk without physical issues , at least with doctor I can use history and write to them in advance with info ( as i do ) , i cant do that when im required to represent myself in person because of my limited ability to answer questions - which then puts me at further risk because it will just misinterpreted against me i.e. what happens if i cant answer a question I get so bad given they don't even acknowledge health problems or history ?

     

    That and the fact that I will have to sit the whole time I'm doing it ( unlike at home ) just spells disaster because sitting or being upright only makes it far worse .-lying down however is a bit easier..

     

    If I went to London or even Glasgow Id have to fly , and even then its big risk because its not like i can test run it beforehand..- hence why it has only been something I considered now as final resort / resolution.

     

    Bottom line is I dont know if I could go even then , but if their going to stop my ££ because I do have evidence their happy with , then what am I meant to do ?

     

    I have no one to represent me ( my folks are clueless ,old and have their own worries too ) so who else is there that is going to fight my corner ?

     

    mike


  13. Hi mikv, No GP will give you a letter on the basis of a telephone consultation. It would just not stand up for many reasons including legal and ethical. If you can afford it perhaps a home visit by the G.P may be the answer.

     

    Perhaps Local Patients associations/charities may help in the cost.

     

    Another alternative would be to get a private physiotherapy assessment at home which would clearly state your abilities. DWP/ATOS would have to accept this.

     

    I spoke some physio today who told me anything he wrote would not be accepted by ATOS and that is has to go through my GP and requested by him .

     

    He suggested it would prob be better to try and get a private referral ( esp if the waiting list here is longer ) and as I already had a Specialist accept me for one years ago even before I became as bad as I am.


  14. Not trying to be difficult Mike, but if ATOS hear you are attending an appointment in London, think they'll expect you to be able to attend an apointment with them.

     

    that is true , although it is not just Prof Graham I am going there for ( hopefully ) but this scan which is one of kind and not available anywhere else , nor do is it mean theres any less risk - but at least I'll will be taking for good reasons other than with someone who is not eeven possibly qualified as doctor never mind one in EDS .


  15. HI mike try the osteopath then, things may be different north of the border. Good luck:-)

     

    I've managed to find a chiropractor here who claims to be familiar with EDS and can do referrals so we'll see.

     

    In the meantime I've booked an appointment with Prof Graham in London for dec 18th ( his earliest ) but I doubt ATOS are going to be non to happy about it or allow me that much leyway so not sure what I can do other than explain the doc would need to send me to specialist for eds any way of which theres none here . ( closest and only one in Glasgow has 2 yr waiting list )

     

    mike


  16. Outside of the U.S.A osteopaths normally are only considered as complementary therapy. Please see link below.

     

    http://www.nhs.uk/conditions/Osteopathy/Pages/Introduction.aspx.

     

    Normally a scan of the type you want is authorised at consultant level. So you would need to see a consultant rhumatologist / orthopaedic type to get the referral. However it may help to research if that type of scan is available in Scotland. If not help towards travel costs can be obtained through the NHS.

     

    have you tried the website below

     

    http://www.hypermobility.org/forum/viewtopic.php?f=3&t=13364

     

    I am actually already a member and have been for while of that site ,its pretty useful as you say.

     

    Funnily enough it was radiologist herself I spoke for that scan that said I could get referral through an Osteopath.

     

    That type of scan is the only type available in the UK unfortunately, its very unique in that allows different views upright.in different positions i.e. rotation, flexion etc

     

    mike


  17. Two threads merged.

     

    In your first post you say that this was to cover you against fraud. In which case it could be a card protection policy and there would only have been one annual payment.

     

    If it was PPI then there would have been an amount added to the account each month that the card showed a balance due.

     

    Whichever it was they are both reclaimable if mis-sold but the process for each is different.

     

    Can you clarify which it is please? Do you have your statements?

     

    Hi,

     

    It was actual the annual , which was £23.00 if I recall .

     

    mike


  18. I believe I was mi sold this as being necessary to cover my cards against online fraud when I was already disabled at the time before I applied for it ( I've been disabled since 2003 ) some 5-6 yrs before I ever took out PPI.

     

    It turns out too , that money for the PPI has just been taken out of my bank as well despite the fact I did not renew it .

     

    Am I correct in assuming that this is something that would qualify a gross misrepresentation on the part of RBS and something I should be able to claim back for ?

     

    I did not and never had had an overdraft , mortgage or any of the other things RBS mentions their PPI cover ( which they would have known ) ,and the fact I was already disabled would I assumed already have invalidated it any way

     

    Payment Protection Insurance (PPI) is an optional insurance policy often taken with loans, mortgages, overdrafts, credit cards or store cards that could cover you if you can't meet your repayments in the event of involuntary unemployment, illness, accident, disability or death.

     

    thanks folks,

     

    mike

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