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mina2974

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Everything posted by mina2974

  1. HI I think I did send you a pm but will reply on thread in case anyone else is in a similar situation, I can only pop onto the forum every now and then due to having my son at home still, In hindsight R had AS well before he started showing signs of the kidney disorder , his pead feels that he was showing signs of it from about the age of 7 , but his high tolerance for pain and discomfort masked it for years, he used to wake up every morning with huge bags under his eyes but as he did not sleep more than two hours a night we thought it was due to that, My son is so pedantic and pro
  2. Thank you Bookie , think I have got the hang of this fighting lark now, Believe nothing they say, quote case law to back up every point you make and generally make sure they know you are the pain in the bum that will keep shouting until you have got what you need for your kids , record everything they say and they hang themselves, We have really had some of the most incredible things put in writing to us If only the Asd was as easy to manage, since I last posted about R he's now got 3 new dx's , anxiety disorder, depression and Pica , I had read somewhere that the traits can become exa
  3. Thank you HB, I have read everything I can get my hands on to find out how the change will affect lower income families but there seems to be no mention of this anywhere, If my worst fears are correct then this is the change in tax credits that is going to affect everyone that works the most Our household income is only 13k a year, at the moment none of it is taken into account in the tax credit calculation, when the limit drops to ten thousand 3k of it will be taken into account and when it drops to 5k a year 7k will be taken into account, if we lose that much in tax credits ther
  4. Hi I have been trying to work out how the change in tax credits announced in the emergency budget will affect us , We are safe from the new 40k lI'mit but im not sure how the new income limits are going to affect us? At the moment the income allowance is 25,000, this will go down to ten thousand and then to 5 thousand , does this mean we will lose an equivalent amount of tax credits ? If this is the case then we really need to think about selling our house as soon as possible or we will not be able to meet mortgage payments, I was working full time when we brought our hou
  5. Round one with Education won, Miss B has a full time specialist placement , shouted to everyone including the local MP who was so rude he was sent a slap via e-mail They have until July the 27th to respond to R's am hoping that they will see sense with him as well, wish me luck
  6. Had a rather shabby attemt at a statment for Miss b , sent it back with a few ( ok a lot ) of suggested amendments , I do think we will be going to tribuanl with this, Have also had SA agreed for R , we have camhs onside to push for sen school, he's now out of school due to a total nervous breakdown involving an attempt to kill himslef , 2 stupid ss and 3 police officers restraining him Parent bashing is still going on but no longer care, kick me and i Kick back harder , Have decided to move LA's at the end of this year, hear witneys up and coming and im sure DC will take good care of me mwh
  7. Hi all Disappeared again sorry its so hard with the kids atm , situation to date is they said yet to SA, we should hear by the 20th at the latest if they are going to statement, I think that they said yes to shut me up, but got a bit more than they bargained for as I went to some of the biggest names i could afford for independent assessments. Am hoping that I will not need to go sendist but just in case Have a whole file of illegal practice that I can use . R tired to kill him self again, he's crashing and sinking into a depressive state thats hard to cope with, funnily enough the sch
  8. Hi I put a new request in for statutory assessment in this week, Miss B is still not in school, We have now reached the point where no one in the LA will return our phone calls, I can only assume that we have been blacklisted in some way *sigh Have been very very careful with SW but although they are ineffective they can't really call us bad parents as they placed an extra child with us, I refuse to have my child forced out of education , Just not sure how to force the LA to communicate with us grr
  9. Well done , nice to return to some happy news (((HUGS)))
  10. Wow just read through all my posts back again and sadly no better off . Miss Boring was assaulted at school on the 16th of this month , she is still not statement as R became ill again and I could not pursue the tribunal process , county EP and Labbs got the same test results as private dx's but state minimum support requires, county salt requested visual aids for communication , all advice was ignored , the school withdrew all support in year six, Miss B was assaulted at lunch time, was not seen by a first aider and was left to sit all afternoon with significant bruising to her body
  11. Can anyone advise how i can protect my self from prosecution and withdraw miss b from school until support is offered My reasons for doing so are physical and racial abuse on a daily basis, to include being attacked by a group of 7 girls, spat on, called retard and racial insults, clumps of hair missing out of her head and then thrown at her, kicking and punching. NO support at all, on school action plus but no iep or care plan, still waiting to hear if they will statment but in the mean time she is bed wetting and being aggressive at home due to the stress she is under .
  12. Hi R has been in hospital with another flare up of his kidney disorder, but have kept the pressure up on the LA, 2 weeks left until i find out if they will do statutory assesment, the school have put miss b on school action plus but still refuse to give me any idea of what support if any is in place for her. No IEP and no support??? Have got in touch with the head of the statmenting dept who is not at all happy at how I am being treated and am using the last of my savings to hire a solicitor to send a threat-o-gram to them. Im so tired of being lied to every time i think that I am ge
  13. Hi I have now got a report from a consultant EP ( private ) which states that Miss b is spelling at the level of a 6 year old and reading at the level of an eight year old, she is 10 years and 8mnths at the time of testing. The report also confirms dygraphia and Asperger as well as indicating traits of Adhd, I have a salt report that confirms anxiety and literal interpretation of language, an OT report that confirms dyspraxia and autistic traits were observed as well as sensory issues and hyper mobility, I have a report from clinical psychologist that also confirms Asperger and traits of
  14. HI sorry for not being around much, am still renovating house and am going through hell with the schools, Point blank refusal to accept that R has any asd traits, am biding my time to see how he goes at senior school but have a feeling I may need to have a scrap with them. Major issues with miss boring that are now at a stage where I need help and advice on how to go to war. I have been informed by school that miss boring will not be put on sen register until she has been seen by ep and learning support, ok so what right? hmmm except two months later when I asked what was
  15. Thank you Bookie, I love the way you feel about your son, I feel the same about mine, what the world sees is not who he really is, inside that awkward, painfully shy little boy is a funny wonderful child, After his dx he said " All my life I thought I was bad and now I know that I am not, I have Asperger" Not one suicide attempt since the dx! Have had a time of mourning and regret for all the mistakes i have made and the future he will not have, but am ready to face anything life throws at us. Now to start the whole process all over again with Miss Boring lol, do they really th
  16. The complaint with the evil old school went through the governors and I now I just cc all letters of complaint to the LA and MP and leave them to it, The CAF co-coordinator is rather unhappy at the fact that she has been so mis-lead (haha) so another pair of eyes on the old school, Next step is to send in a dpa request to camhs to find out who exactly gave them the mis-leading information, once I have positive proof I will decide what the next step should be;), the local grapevine tells me that the staff at the school are a little jumpy and I am hoping that I am the reason for this, t
  17. :shock:Hi Have been rubbish on keeping things updated recently but my mind has been mush with all the cra* I have been dealing with. firstly on Monday we went to family therapy, we found out someone ( no prize's for guessing) had told camhs that my ex had sexually abused kids, a lie by the way and that is why the psychologist had sent us to family therapy, Well by Lunch time they had got us to do a family task, they went off to video it and came back saying that they had never seen a family do the task so quickly, apparently it took us under five Min's and the usual time is ab
  18. Hi Tig's Am a little sad atm, its been 5 years of saying something is not right with miss B and now the dx is here, I suppose its real now, if anyone can recommend any good books on dysphraxia I would appreciate it! Am starting councelling on the 17th as I felt that it would help me get things into perspective. The school lost my son for almost two hours yesterday which im not amused about, he managed to leave the premesis despite them having security gates, belive it or not his anger management lady told him to "walk away from his anger" well he got angry with the school and d
  19. Hi I just wanted to add a little update on R, if you remember he was physically restrained at his last school, Well R being the way he is did not tell anyone until this half term that his back has constantly hurt since the restraint, He see's a pead for his kidney disorder who can also dx hyper mobility as its her specialist field, I don't really understand much about it to be honest, but she says his hyper mobility is very bad, anyway it seems there is something wrong with his back and he now needs to have physio, R says the pain only started after the restraint, he is still very sca
  20. Hi Tiglet, Im sorry I have not posted sooner but have had so much trouble in the last few weeks that my head is all over the place, you letter worked! Miss boring was given some test's today, they say that she is definatly dyslexic and also that she has dysphraxia, am a little stunned to be honest, have been telling schools for 5 years that something is not right:(, I have to wait for a written report from the school, the SenCo said he was not experienced with children like miss B and would need to call in outside agency's? Am not sure what that means though as he seem's to really know hi
  21. Hi all have a houseful of grotty sick kids:eek: my poor head is pounding from it all lol Have had an e-mail today from camhs to acknowlage complaint, so we shall see how that goes, R has been predicted level 5As for his sat's across the board am very proud. Now onto Miss B, her teacher has assesed her as being capable of attaining a level 3c, which is a load of rubbish, it would put her on the same level as her younger sister Annie who is 8 but there is no way on earth that miss b is working at the same level as her! her last lot of tests before the previous half term at t
  22. Thanks Bookie and Tigs, will put together what I need to say tonight , Have sent a complaint in to camhs
  23. The year long wait is for the crisis list , S/S did put kids down as being in need but not much good if that's it, nas say the nearest person is in Banbury but only takes referrals and gp can't refer out of area, do you see why I am going nut's lol
  24. Laffin Bookie this is the mind numbing thing neither of my kids are on school action/plus, both have external involvment, Miss boring used to have an IEP and SA+ until the move to warwickshire. EP, and occ health, R is doing CAF, Camhs, has a consultant pead for other illness, orthapedic consultant, Occ health, and anger management Not seen S/S again since that one visit , Honestly no one will lift a finger for either of them until they hurt either themselves or someone else I am banging my head against brick walls and getting nowhere fast, Have been told that their behaviour i
  25. Hi I posted a while back about my son R and also my daughter miss boring who both have asd issues. Have things got any better lol not a bit, not even in the slightest:sad:, R has still not seen anyone from cahms and gp says there are no asd pead's in the area, he almost hit another child in the head with a glass yesterday at school, has run out of the house and had to be found by the police, accused me of hitting him , taken knife's to kill himself and is not sleeping much on top of daily metldowns after school. school see nothing wrong:cry: and we have now been waiting 8 months to
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