Thanks all for the support and kind words folks,
Latest update:
I recieved a letter from DWP this morning (9 weeks later), I was going to phone them today, (I kept putting it off)
They state:
You made an appeal against a decision about disability living allowance.
We have looked again at the facts and evidence we used to make our decision.As a result we have changed the decision.

Personal care
They have now awarded me the middle rate of care component.
Help with getting around
Higher rate.
Finally its nearly sorted.
I am happier with the decision as this means I now get back what I used to get,(minus a few quid) being the difference between middle and higher rate personal care.
This has been awarded with no end date, which means its for the rest of my life.
I don't think I will take it any further and appeal for the higher rate personal care.
I think that would be pushing my luck a bit too far.
I have also got my claim back-dated to when I first got refused DLA from 15/03/2008 to date.

So a big payment is due to me for personal care.
Which details of are in the letter. (To be paid tommorow)
YAHOO !
Next:
I then looked up benefit advice on the internet, and as I recall, I can now get back Income support if I receive the middle rate personal care component,
Well thats what it states on the DWP website.
I phoned Income support and asked them about this.
They are sure I am correct.
They are now going to look into this, and send me forms to fill in.

I did state that this was an ongoing appeal and I was assured weeks ago that if I was awarded Income support back I would get it back-dated.
But of course the person I spoke to did not know.
They owe me a fortune if my calculations are right.
I will be chasing them up about this, as they are quick enough to stop paying you.
This will also make a difference to me having to pay part of my rent. (Which I have been doing since March).
My local council stated that if I got back Income support they would pay me back.......every penny I paid towards my rent.
I don't hold much hope about this as I expect them to put my rent in credit with the ammount I have paid.
This is no good to me as my award has no end date which means the money sits in my account in credit for the rest of my life
It just goes to show that if you stick by your guns you can win.And without going to a Tribunal, which I stated I still wanted to go ahead with.
They must realise they made a BIG mistake, an apology would be nice.
Someone should be keel-hauled for this farce.
There was no way I was going to lie down and give up.
I now know my rights and stuff them

How many other people have they done this to ?.
I will keep posting about how things go, and cannot thank everyone enough for the good wishes and support I have received on this board.
I just hope everyone else gets things sorted out as I have.
This makes a huge difference to my quality of life and no more sleepless nights.
Now, where is my Passport ?
I need another holiday
Thailand here I come, again.
Best Wishes to everyone
Pete