Re: adhd/autism - Page 3

mrsc · 15th January 2008, 23:58

Hi Bookie,

Feel so good I could have skipped out of that school tonight,if only I hadn't worn new shoes that was killing me

Bookworm · 16th January 2008, 00:00

I hope you don't say thing like that in front of your lad, you'll scare the hell out of him!

mrsc · 16th January 2008, 00:04

Oh no I wouldn't do that to him:o

maybelline · 16th January 2008, 00:20

hi, mrsc, great to hear you had some good news

mariejader · 16th January 2008, 11:34

That's fantastic news MRSC, I hope you had a celebration in your house last night.

mrsc · 25th February 2008, 10:09

Hi all,

Just thought I would update,finally got the diagnosis Aspergers Syndrome,came away with a load of info to read,have to go back next week to discuss what we want to do from here.

maybelline · 25th February 2008, 11:12

you must feel releived to at last know how to proceed, well done

the hardest thing next is to identify in what way AS affects your child/young person as each is unique, however, its just a matter of watching, dont assume everything in the textbook will or will not happen. good luck.

oh and another you wont often hear about, dont let the latest special interest be AS itself! this will mask what is really going on, what can and cannot be achieved, best wishes.

Bookworm · 25th February 2008, 12:57

SO glad you got there. A lot of people don't want their child "labelled", I found it invaluable for me, my child and to get him the help he needed.

Have you thought on how you want to proceed from there? Don't forget to apply for DLA and Carer's Allowance if you haven't yet. Find out if there is an AS support group in your area, NAS might be able to help.

Any questions, any guidance, or if you want some pointers on reading matters, just holler.

honey5 · 25th February 2008, 13:31

what a relief for you all

its an emotional roller coaster it truely is, you dont want to hear that "label" no one does, i cried for days after Jack got his diagnosis at almost 7 yrs old (oddly something id fought for too) It answers alot of questions it explains alot of "the unknown" for everyone involved .
Im at the minute trying to get a diagnosis for his twin sister, who is fortunately or unfortunately at the other end of the scale from the little fella. Shes very clever, very clever indeed but emotionally detached and boy what a fight im having with this one

hope all goes well for you and yours from here on in
tracy x

Bookworm · 25th February 2008, 13:36

Quote:

you dont want to hear that "label" no one does

Couldn't disagree more. I did. It allowed me to go back to the school and tell them that no, it wasn't me being an over-protective/bad parent, it wasn't Tristan being "naughty" or "choosing" to misbehave, no, sending him to a PRU wasn't going to help, no, he couldn't function in a mainstream school, yes, they were discriminating against him, oh, and yes, I was RIGHT all along, etc, etc...

The label opened every door that until then was closed because I was being dismissed out of hand. The problem with my child was already there. The label was necessary to get him the help.

honey5 · 25th February 2008, 13:52

if im honest i was never dismissed with Jack, he was born with left ventricle fluid (which cleared within days) so the chance of these things occuring was always a possibility, it was a time scale issue with his diagnosis, they wouldnt treat at 18month when the initial diagnosis was apparent to all
Brooke on the other hand doesnt "appear" to have OCD ADHD ADD dyspraxia dyslexia etc, according to school as acamedically she is really bright, her behaviour and emotional detatchment is of some concern, but is this a global developemental delay due to prematurity???????? goodness knows, all i can say is he has that emotion, which im really grateful of
honey x

mrsc · 25th February 2008, 14:01

Thanks everyone for you kind words and advice,as you have, and are still going through it, you know what you are talking about and it's just nice to speak to others who have been there.

mrsc · 25th February 2008, 14:21

Quote:

Originally Posted by maybelline

you must feel releived to at last know how to proceed, well done

the hardest thing next is to identify in what way AS affects your child/young person as each is unique, however, its just a matter of watching, dont assume everything in the textbook will or will not happen. good luck.

oh and another you wont often hear about, dont let the latest special interest be AS itself! this will mask what is really going on, what can and cannot be achieved, best wishes.

Have to agree with you,as have been doing a lot of reading over the weekend,accounts from people with AS also their carers and siblings they are all so different.

Quote:

Originally Posted by Bookworm

SO glad you got there. A lot of people don't want their child "labelled", I found it invaluable for me, my child and to get him the help he needed.

Have you thought on how you want to proceed from there? Don't forget to apply for DLA and Carer's Allowance if you haven't yet. Find out if there is an AS support group in your area, NAS might be able to help.

Any questions, any guidance, or if you want some pointers on reading matters, just holler.

Having another meeting next week with them,as they didn't want to overload with info as it was a lot to take in,and to have a look at what he may need help with.They were saying that he has a very high IQ and that some of his teachers have noticed he is underachieving in certain subjects at school,probably due to the communication problem.So will have to look at that a bit closer and see what can be done.

Quote:

Originally Posted by honey5

what a relief for you all

its an emotional roller coaster it truely is, you dont want to hear that "label" no one does, i cried for days after Jack got his diagnosis at almost 7 yrs old (oddly something id fought for too) It answers alot of questions it explains alot of "the unknown" for everyone involved .
Im at the minute trying to get a diagnosis for his twin sister, who is fortunately or unfortunately at the other end of the scale from the little fella. Shes very clever, very clever indeed but emotionally detached and boy what a fight im having with this one

hope all goes well for you and yours from here on in
tracy x

Know how you feel Honey although he does give lots of cuddles,there doesn't seem to be emotion there,never know how he is feeling and that hurts.A few months before all this started we noticed a lot of small cuts on his arm,when I approached him he said it was an accident. But it was no accident, there was I would say about 10 cuts going one way and another ten going the other, now this does worry me,although
he has never done it again.

honey5 · 25th February 2008, 14:46

aw bless him, its not right he will know this too, Brooke pulls her eyelashes out when i correct ehr behaviour, its awful as its seen as self harming, but its not its frustration i honestly believe, the not belonging. in a society that dictates you MUST must be awful at times
honey x

daftada · 3rd March 2008, 17:13

I was diagnosed with Asperger's (as well as traits of Dyslexia, dyspraxia and ADHD) last year at the age of 25, I wish doctors had known of this when I was at school because I really struggled from secondary school onwards. I hope you can get all the help for your children that they deserve, they are lucky to have such understanding parents! I'm currently trying to help my brother get assistance at school (who has the same symptoms as me, but slightly worse).

I don't know if it would help but I went to see a private company called Dore who provide a form of tutoring (i guess is the best term for it) for children and adults with dyslexia, dyspraxia and ADHD. Personally, after completing 18 months of daily excersices (they revolve around hand-eye coordination and balancing) I found my balance, spelling, memory and sleeping patterns all drastically improved. I think the benefits for each person may differ somewhat but it may be something to consider (although it is not free).

If you ever need advice from someone who has lived through AS I would be very happy to help.

mrsc · 3rd March 2008, 19:03

Thank you very much

,been to see the speech therapist today,he has decided he doesn't need their help,she agreed with him just wanted it to be his decision,they had a long chat about things,and if we feel in the future he requires the help we can just refer him ourselves.

He has spoken to his friends about Aspergers and told them about his diagnosis they are so nice,it makes no difference to them.

He does think it will help with school, there is going to be a meeting at some point with the school.

I really appreciated your offer.

groovycaz · 3rd March 2008, 19:45

Hi daftada,
its true that certain exercises help with hand/eye co-ordination, my boy has dyspraxia and autism, his fine motor skils are pretty bad, cant fasten buttons, zips etc, hes 10 now yet still cant ride a bike, even a quad, not very good with steering, we do this exersise at home with him every day and thats, with is eyes closed he walkes up 4 stairs without holding onto the rail, then back down, again with closed eyes, its helped him a lot with his balance, lots of ball catching games and hopping and cross over games also help, anyway thanks for the info, I,l look into that..Gc

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