Opting Out of the New NHS Database 2007

[maybelline]

ok my family (but not me) received a patients survey thing which I think is really some kind of forerunner to putting the records on the new database as I had a quick look at the nhs web which makes me think this, strangely they dont seem to want my records but then I have complained strongly this last year to my GP, and my PVT who have false information (speculatively opinions and totally false info - which they were already sharing i.e my ex husband was in prison!!!???) no such thing, total confusion but a very serious error on their part, and misdiagnosis or life threatening conditions, I digress, I do not want to be on the new database. does anyone know if the patients survey is indeed related?

[demon_x_slash]

BUMP - perhaps a medical professional on here could let us know whether the 'patient survey' is anything to do with SPINE?

[whirlybird]

Sorry Im not a health professional but when i asked my GPs office about the database, i was told nothing was happening in my area until 2008.
When the time comes, we will be sent info through the post which would include opt out details.
I agree totally,its bang out of order we should have to write to patricia hewitt explaining in detail the precise nature of what we dont want revealing to all and sundry!

[demon_x_slash]

There is a very good report on the NHS IT fiasco from its inception in this fortnight's Private Eye - if there's interest and I can get my scanner working, I may post it up here.

	Are you letting your bank keep your money Are you giving away thousands of pounds?? Many people aren't claiming all of the money they are entitled to when they make their bank charges claims. You have been forced to pay unfair bank charges. Have you forgotten that your bank has charged you inteest on those charges? If you are overdrawn and the bank owes you charges - then your overdraft is made up of charges - money which you bank owes you. Yet you are paying interest to the bank - on your own money!!! Follow this link to see the discussions on this. You might even double th size of your claim.

[demon_x_slash]

My scanner's playing up, so I could only do them as images. Since I have no permission to post attachments, they're on my myspace page - direct links below:

Page One
Page Two
Page Three
Page Four
Page Five
Page Six
Page Seven
Page Eight

[demon_x_slash]

And more vindication, here.

Records hit by NHS computer error 08/05/2007

Hundreds of inaccurate patient records have been created every day due to a fault on the controversial new NHS computer system, it has been claimed. The problem affects patients in Greater Manchester who have hospital appointments booked via the online system.
NHS Connecting for Health, which is overseeing the £12.4 billion upgrade of the patient records system, stressed the fault would have no impact on patient care.
An article in Computer Weekly magazine revealed the problem arose after computer experts installed a software upgrade.
This caused the computer to automatically create a new blank patient record without checking if one already exists raising fears doctors may be presented with the wrong information.
A spokesman for NHS Connecting for Health said the problem was expected to be fixed in the next few weeks.
He said: "Although comprehensive testing is undertaken prior to the upgrades taking place, it is not unusual for these kinds of upgrades to identify teething problems in the early stages following implementation.
"We estimate that around 400 duplicate patient records might have been created each day. However, the system is being continually monitored throughout each day and where a duplicate is identified data is being merged to form one single record for each patient."
He added: "Prior to the application of the permanent fix, an interim solution has been put in place to identify the duplicate records and correct them. This has now been put in place with the full agreement of those organisations affected and will have minimal impact on the users of the system and no impact on the delivery of patient care."
Among the places affected by the problem are the University Hospital of South Manchester Foundation Trust and PCT Clinical Assessment Centres in Greater Manchester.

[maybelline]

NHS Connecting for Health — NHS Connecting for Health

just having a look at his.

[demon_x_slash]

PMSL - "Ministry of Truth strikes again!"

Myth busters — NHS Connecting for Health

[demon_x_slash]

About time this thread was bumped

[patrickq1]

Let's go one step further and apply aforesaid sterling skill and planning...to everything. Medical records (handy for all those insurance companies); educational records (only one A level? what a shame, Mr. Smith); employment records (ooh, off sick for two weeks five years ago!); financial records (couldn't pay the mobile bill last month, eh?); criminal records (scrumped as a lad? dangerous); travel, abroad or at home? that too (what are they doing and where are they going and why?); where you've lived previously (hmm, unassigned council tax debt - ah, so-n-so lived here near that time, must be them...); oh, and your biometrics, so eyescan, fingerprint, even DNA if it gets to that fearful stage (she sneezed near the scene ten minutes ago - must've been her!); all linked nicely to your family members and everyone you've ever had a joint bill/contract with, so we can add socioeconomic status to that (ugh, look what sort of family he comes from, awful yah?).
this is a case of big brother going over the top NOT EVEN THE GESTAPO HAD THIS MUCH INFO ABOUT JEWS during the ww11,
it needs to challenged at every twist and turn...do you know who has implemented the system hopefully it isnt the AMERICANS who are now doing all the medical reports ALL WORKS TESTS as they are and have ties to experian in america and the same company in america who are being sued in class actions of 25 million americans and the canadians are now starting a law suit against them they are also the largest insurance compnay ,s in america....so all data like this should now be brought to the attention of your MP and also its time for the AMP to bring it to the fore in the european parliment to bring this to a halt data protestion what a laugh their is none
patrick

	Credit Report Click link to open in new window.

[maybelline]

here here, and the phone bill, didnt pay it TEN years ago?? tut tut, allowed to keep that indefinately dont you know (equifax) grrrrrhhhhhhh

	Credit Report Click link to open in new window.

[maybelline]

CRC Conference 2007 Archive ~ Credit Research Centre

came across this, if youscroll down Afilliations our cra friends appear here too

	Credit Report Click link to open in new window.

[andrew1]

Originally Posted by patrickq1

it needs to challenged at every twist and turn...do you know who has implemented the system hopefully it isnt the AMERICANS who are now doing all the medical reports ALL WORKS TESTS as they are and have ties to experian in america and the same company in america who are being sued in class actions of 25 million americans and the canadians are now starting a law suit against them they are also the largest insurance compnay ,s in america....so all data like this should now be brought to the attention of your MP and also its time for the AMP to bring it to the fore in the european parliment to bring this to a halt data protestion what a laugh their is none
patrick

INPS

	Credit Report Click link to open in new window.

[Annie777]

The point of it is to make things better for patients. You go into a surgery and you can have a referral made automatically without the pallaver of referral letters by snail mail. The consultant at the other end can then see your med records on screen so doesn't need all your notes sent. Technically a good idea for more efficient treatment.

However, obviously there need to be stringent security procedures in place. The information is already there anyway - just in paper format. This should theoretically put it into a more secure format than lying around on surgery shelves. So basically I don't think the ideas behind it are sinister or big brother-ish. The NHS is probably the only organisation of its size that still uses a cumbersome paper system and they are trying to change that. A paper system means that your gp spends a lot of time trying to find out what's happened to your referral letter rather than discussing your prognosis. I guess they are reluctant for patients to opt out because it will mean they have to be processed outside the system. I was really impressed when I went to see a consultant recently and he had all my blood test results in front of him on screen. Personally I think it's a great idea.

Maybe the government needs a dedicated department devoted to ensuring security and accuracy of centrally held information. Together with a procedure for correcting errors or ommissions where the public can feel confident that problems will be fixed and where work is ongoing to protect data from corruption or hacking.

[patrickq1]

thank you andrew i have read some of the vision 3 documentation,and the very elequent letter above that should or is designed to avert peoples fear,now on vision 3 data retention all your data will and is available to the BMI INSURANCE AND ALSO MORE DISTURBINGLY the DATA CONCERNING GENETICS AND DANA is only temporarly halted meaning at a later date your genetic data will be available and also all dna data ,can you imagine this ,,,,,
i am more convinced than ever all because of the nice letter explaining the benefits,soon the benifits will only be of benefit to INSURANCE CO and not for our benefit,the letter above mentions the data must be protested i would like to ask FROM WHO when it is already available through the vision 3 project

Medical Report for Insurance Purposes

General Practitioner’s Report

The Agreement between the ABI and BMI, along with the Data Protection
Act, requires the GP to ensure all information is adequate, relevant and not
excessive.
We will treat any information you provide strictly in line with our
confidentiality policy. This keeps to the guidelines issued by the Association
of British Insurers (ABI). We will not use the information to assess
insurance applications from anyone other than the applicant. The questions
in this form are standard across the insurance industry for health and lifeprotection
products. They have been agreed between the Association of
British Insurers and the British Medical Association.
The format of this report is based on the agreed Insurance Industry
Standard eGPR.
It is important that the signing GP checks the report for any errors and
removes any references to third parties before sending to the company.
The GP must ensure that all relevant information is included for each
section. If the record has been summarised from the Lloyd George and only
“headline” data for the illness provided the GP must edit the report extract
to provide the additional data relevant to the insurance applied for i.e. to
confirm outcome of the problem and ensure the other sections of the report
contain details of any associated investigations or treatment.

Insurance Company Details

Company Name and Reference

Last 1 Medical History Record where Read Code is 9E41.00 Life
ass.prelim.rep.completed

Patient Details

Name

Title, Forename, Surname Date of Birth
NHS No.
Address main address Patients main address details

[patrickq1]

so in a nutshell the DATA is already out their and being shared with the insurance companies contrary to the nice letter posted above....no strict guidlines are in place so why is it available without our say so
patrickq1

[Annie777]

I don't know who it is shared with but there are strict procedures under Caldicott regulations etc as to who is allowed to see it and how much they are allowed to see. The sort of data sent through the system is anonymised under data protection. Paper records exist and have always existed. This is a way of consolidating all the different paper records rather than have info that the GP or consultant hasn't received. It's a good thing for the patient, the doctors and the taxpayer because it cuts down on admin, postage and faxes/phone calls to find out what's already on screen.

Obviously you need to have a system which allows a certain amount of info to be available to professionals to allow them to do their jobs properly so that they don't end up treating the wrong patient etc. Obviously the data needs to be in a secure format.

	Record your calls Follow this link to read the review of the Truecall telephone recorder and call manager. This is the Rolls Royce of call recorders. It's a bit pricey but if you buy it with our special offer you will get it at cost: about 20% discount. How much do we make on the deal? - Nothing at all. You can also buy cheaper devices from Maplins. Truecall is the best - but the important thing is to record your calls.

[patrickq1]

i do understand the need to make data available to the consultants and doctors ,but the goverment have not made available any considerable gaurantees that the data will not be sold to a third party their is also no secure ,in fact to entrust this data with the goverment who cannot look after any data and when they are already in discussions with the data i posted above

Medical Report for Insurance Purposes

General Practitioner’s Report
this data will be sold on then we have the genetic issues of DNA data being sold for the above reasons,this has not been denied by the goverment ,
so hence the need for everyone to sign a DO NOT SHARE MY DATA WITH ANYONE....

[Annie777]

I guess that's why I said that the best way forward would be for a dedicated body to be set up to deal with all these issues. After all it affects all information stored on government databases and not just NHS.

[mozzat6]

sorry new to this, without spending much time trawling the entire thread, are our sensitive medical records now on-line or do I (or should that be can I) opt out. This government is obsessed with harvesting data on its citizens.