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  1. Quick update received letter from DLA today after asking to have decision to be looked at again. Basically have been turned down for HRM, In the information we used bit of letter it just says information from your claim pack On past letters they have stated they have contacted medical professionals. I have rang CHAMS today and spoke to the guy who works with my son and he said they have never contacted him about the claim. So whats next? Appeal? or do I ask for a written statement of details? Thanks in advance Zoe
  2. Hi just a quick up date got the review forms filled them in and sent them back about 4 weeks ago now. Got a letter saying decision could take up to 11 weeks and to ring after 8 if I had not heard anything and was concerned. Just a matter of waiting now. On another note im having a lot of trouble with people in my area. My children and I are being verbally abused in the street. I have been called ****, a social bum, a leech along with words i could not possibly type on here. People saying there is nothing wrong with my son he is just really naughty and I tell him to behave this way for the extra money. Feels like a total witch hunt. I am not even on benefits my partner works 300 miles away during the week to provide for our family but because they dont see him home suring the week im playing the system and im on benefits. Even had people saying I dont have a partner and im a single mum with 5 kids with 5 dads! I do have 5 kids with two partners but i fail to see their point. Its hard enough having an ASD kid without putting up with these petty small minded people. Had one woman who said I have worked with ASD kids and your son is clearly not, yet another neighbour told me she has never even had a job. How do i deal with this?
  3. Bookworm. Well I am Deffo going to try and get high rate mobility. First thing tomorrow I will be on the phone asking them to look at his case again. I have started to keep a diary already and have spoken to his doctor at camhs who is writing me a letter and has said they will even come to the tribunal with me if it gets that far. Your advice is brilliant and I can honestly say it has given me the kick up the bum I need to try and get this much needed extra money. My son is not safe on his own and as such I have to look after him constantly. Its not just my sons safety I fear its the members of the public too. Travelling on a bus is a no go and we live 3 miles away from town/doctors/shops. I have just asked Family fund for some driving lessons so hopefully they will be awarded. Fingers crossed. Once again thank you for your advice and I really do appreciate how difficult it must be to publish your every day struggles. I get quite upset when I read reports that have been written about my son and even the diary that I have wrote about him in the past for dla. Really hits home to me that he will never have a lot of things most of us take for granted. I doubt he will ever leave home or be toilet trained etc. So sad. Will keep you posted on if Im succesful
  4. Thats brilliant. Im sure this will be really helpful. I will ask them to look at the mobility side of things again. Will probably end up going to tribunal like you did but it will be worth it if we do get the higher rate.
  5. Hello thank you both for your help. Yes it is ODD and last time we went they wanted to diagnose him with conduct disorder as he has started lighting fires and tried to kill our pet rabbit. He really is a complex child. Sometimes clear commands do work but most of the time he really does need to be pursuaded to do even the simplest of tasks such as putting shoes on. CAMHS said they would back me 100 percent in getting high rate mobility. As my-spirit-soars-free said I am scared of actually losing money. I will start to keep a diary I always do this when my dla is up for renewal however i tend to focus more on the care side more than mobility. the other information you have provided is really helpful. What do I need to do then ring DLA and ask them to look at his case again? He is actually getting more and more difficult to manage i can no longer carry him when he is on *one* he is 10 and weighs 8 stone. I will go to tribunal if need be. I have read your fight for it bookworm. I already film him in action so that I can show the doctor when we go to see him. Hopefully this will help like it did you. Just such a scary process. Thanks again zoe
  6. Ok I will apologise in advance for the long winded post. My son is now 10 years old. From being a baby he has had problems. He was late reaching all his milestones never crawled. Once he could sit up he took great pleasure from banging his head into the wall /door. I couldnt take him out shopping as he used to scream and scream ( think it was the artifical lights) He was hyper-active, did not like eye contact and could only ever have one friend, he did not play with toys just took them apart and has had obsessive behaviour since around being 18 months old ie watching same dvd over and over and over and over.He was first excluded from nursery and then school in reception the first week he started. He has always been too truthfull does not realise about hurt feelings etc. He exhibits extreme behaviours and gets very violent with no prior warning. He only eats certain foods. Will only wear certain clothes and when he is wearing them will chew holes in the sleeves. He is also dyspraxic - ie cant do buttons even now or ride a bike even with stabilisers or catch a ball well. When he hit five he was sent to see a consultant peadatrican who diagnosed him ADHD ODD DYSPRAXIA. His exact words were "I would diagnose him autistic however his speach is too good". So for 5 years he has taken ritalin and other drugs with no effect (ritalin caused motor and vocal tics) He attends a special needs school and is having great difficulties even here - there are too many people 6 in his class is too much to deal with and he hates the other childrens noise although he is happy to be making it. Because of these difficulties he is 10 and has to wear incontinence pads, Has very low self esteem, does not sleep is having more and more melt downs both at school and at home will not wash himself or brush his teeth just wants to sit in his room and have no dealings with anyone he was refered to CAMHS. The doctor we saw here clearly said he would put his house on him having Autistic spectrum disorder and not adhd. There was a bit of fighting between his consultant and the camhs doctor but now both have agreed to a diagnosis of ASD.I receive high rate care and low rate mobility but the doctor at camhs was adament my son would qualify for high rate mobility. My son gets a taxi to school and has meltdowns on a daily basis which sometimes end up in him not going into school. He has been banned out of 15 taxis and now has one all to him self. He is handled almost daily at his special school and physically restrained. There are problems every morning and evening when it comes to the taxi. I am sporting a very deep black bruise at the moment which is what I got for trying to put him in the taxi. So two questions does anyone else agree with the diagnosis of ASD or would you say he is ADHD ODD DYSPRAXIA? And what are our chances of getting higher rate Mobility? Also just to mention we are currently having him seen by ed psych as he still cant read or write and probably has learning difficulties dont know if this is relevant. Thanks Zoe
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