Quote:
Originally Posted by mich7k  thank you Bookworm im gonna give it a shot |
Hi there hun.
Just to let you know we have been in the same situation as yourself regarding DLA, however we won after attending a tribunal hearing.
We applied for my son then 11 in DEC 2006, he has Asperger's syndrome, Anxiety disorders, learning difficulties and Asthma where he is on a number of medication from the age of 1 yrs old.
Even though my son is asthmatic I also applied when he was a baby and he was turned down and I didn't fight it like I wish I did, as my full time care was given both day and night, he slept approx 2 hrs a night.
However, when he was officially diagnosed with ASD etc at the age 11 I was advised by his specialists to apply for DLA, and this was turned down in March 2007 after applying in DEC 2006, I asked them to reconsider, they still did not award it, and it went to appeal for a tribunal hearing in Sept 2007.
Looking back on the forms I felt that not enough information went in regarding his care and needs given which is constantly day and night, but did not add this information like I should have.
But I did find out it was the school that let him down and nothing else, we requested for all copies of all the submissions the DLA had and it was plain obvious it was down to the school who made a few mistakes in the extra information part, they are fully aware now though.
However, you could ask them to reconsider as many have been awarded from this stage, but also send in any further information and even support letters from specialists your child is under and family members that I wish I did then.
I have learnt a lot about this since my son has been awarded it.
He is now awarded High rate care and low rate mobility.
Although he is 13 I still walk him to and from school, as he has not any road sense, he does not go out alone or he would lose sense of direction, where they look at this and compare this to another child without disabilities of the same age group who has more independence as such.
My son still only manages with little sleep, but even from new born he never hardly slept or even in the day.
He is still under a specialist regarding his sleep issues as everything has been tried but they seem to think this is just the way he is, but I have to watch over him at nights as he tends to have outbursts where one time he'd blown all the electrics and with no sense of danger either he cannot be left to it etc.
I know this site is very helpful, and I also know of another site that help's regarding these issues, this is:
Youreable.com - The leading disability resource for disabled people
where there is also ex tribunal members and ex benefit advisers who deal directly with helpful information in these issues.
.
Just register and check post where someone will get back to you and advise you.
If you do end up going to tribunal, try to get some support through this, such as a representative from your local CAB or welfare rights, they can also come along with you too and all if free to my knowledge.
.
Hopefully you will win just by appealing by not even going as far as a tribunal.
I note these lovely people here have given you some very good information and advice too.
Good luck and fingers crossed your child will be awarded this soon.
I agree with the earlier posts where they state mostly all claims are turned down first time, but your child is entitled to it, so just keep going for it hun - you will get there in the end.
.
Di.
Re: disability living allowance turned down for 5 year old son 
). However, the Carer's Allowance itself is deducted from Income Support (not DLA though), so in reality... you are only better off through the premiums. 
i applied for dla for both myself and my son at different times, and got different rtesults at different times let me make the cloudy water clearer for you 
